"For I will restore health to you and heal you
of your wounds, says the Lord" (Jeremiah 30:17)
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Here are the events as they evolved once Evan arrived at The Rehabilitation Center For
Children at The Cleveland Clinic
Friday Evening April 9 - 4:30PM
Evan has arrived at the rehab center, been issued a room and admitted. We had met several of
the nurses and therapists that will be working with Evan over the next several weeks if not
months.
Friday Evening April 9 - 5:45PM
Kelly, Jenna, Evan and I decided to go down the cafeteria and find some dinner. Kelly
and I fed Evan macaroni and cheese and chocolate milk. He did very well with his dinner and
each day seems to eat more and more. Upon returning to the room, Evan's nurse asked if he
would like a Jacuzzi bath. Since he has only had sponge baths for the past three weeks, this
seemed like a great idea to Kelly and I. Evan however, indicatied that he was to tired to take a
bath (much the same way it always was at home) but decided to go for it anyway. He enjoyed
the bath and we're sure he must feel much better.
Friday Evening April 9 - 8:00PM
Did I tell you that I sent an email to Jim Brickman. Remember Evan is a piano player
and Kelly and I have seen Jim in concert many times and have met him on several occasions.
Evan is a big fan as well and was thrilled to meet Jim in February 2004 at the State Theater in
Sandusky, OH where we live. Jim even signed Evan's piano book. We have not heard
back from Jim yet so I had an idea. I would like to invite all of you to visit Jim Brickman’s
web site at WWW.JIMBRICKMAN.COM and send him an email. Ask Jim if he would send something
special to Evan while he's in rehab. Trust me, it would mean so much to Evan!!
Friday Evening April 9 - 10:50PM
Several people have asked me for the address to the rehab center. Please do not feel you need to
send Evan something. What we need most are your thoughts and continuing prayers. They are so
important and so amazingly appreciated. The address is:
The Rehabilitation Center For Children at The Cleveland Clinic
2801 Martin Luther King Jr Drive
Cleveland, Ohio 44104
Saturday Morning April 10 - 12:05AM
Although we believe each passing day brings us closer and closer to home. It is still very hard
to see your only son going through so much. Even the little things seem like so much work and
seeing Evan struggle is not easy. We are going forward but cautiously. Although we have been
praying so hard for a complete recovery, we are uncertain what the future holds for our son.
The coma and near fatal trauma are behind us now but the threat for further bleeds is very real.
We hope and pray for the best outcome but no one really knows what that will be. I am so
incredibly proud of Evan and I know he is fighting so hard and winning so many of these battles.
His support team is amazing. I will fight for him and with him, side by side forever if that's
what it takes. What is truly provoking to me is that I don't think I could fight for myself
as much as I am fighting for him right now. I have found my own strength in my son.
Saturday Morning April 10 - 12:10AM
I hate to tell you all this but I may not be able to offer an update until Sunday evening.
I don't think I can upload from the Rehab Center like I did from Rainbow. The facility is
checking into this for me and I will not know until I try tomorrow in Cleveland. Please check
for updates tomorrow but if I cannot, please forgive me and I will send you all the
updates on Sunday evening. If I do not "see" you again, have a wonderful Easter holiday.
Hey, I just heard that PRAYERS ON EASTER COUNT AS DOUBLE!!
Saturday Morning April 10 - 8:15AM
It looks like we will be able to update the site from this hospital as well.
Evan had a good night's sleep in his new hospital and seems to be adjusting fine. He had a great
breakfast and then started his first of many days of hard work. While he is here, he will have
physical therapy, occupational therapy, speech therapy, recreational therapy and even water
therapy (in the pool). Kelly and I have told Evan that he needs to word as hard as he can so
he can get out of here and we can all get back home. He gave me a BIG thumbs up. We have
seen, Evan is definitely a fighter.
Saturday Afternoon April 10 - 12:05PM
Jenna and I just walked in. I will be spending the day with Evan while Kelly takes Jenna to
the mall. Jenna really needs a distraction right now and as she is a girl, the best distraction
for her is..... well..... THE CLEVELAND MALL!! They will both come back to Cleveland tomorrow
so we can all spend Easter together. The doctors have told us that it could take
Evan up to 4 months to open his right eye. As I talked to him, he turned his head towards
me and opened both of his pretty blue eyes and smiled at me. It was just for 5 seconds or so but
it was GREAT!!
Saturday Afternoon April 10 - 1:00PM
I just finished feeding Evan his lunch. Trust me when I tell you this place can puree anything.
Today he had pureed chicken nuggets...WOW. He also had mashed potatoes, thickened apple juice
and chocolate milk. He really enjoyed the chicken nuggets! The tasted the same, just had a
different shape.
Saturday Afternoon April 10 - 3:00PM
Before I came back to Cleveland with Jenna, I had to stop for a quick haircut. I was actually
due for one 2 weeks ago but could not make that appointment and was now way overdue. Yes,
ladies some men hate to let their hair get crazy too. So back to my point. A very dear friend
of ours who works at a salon in Sandusky gave Kelly and I a gift certificate. I don't know if
she would want me to say her name so I will not. I can tell you she has been dear to us for
almost 15 years. She is the daughter of very, very close friends. The gift certificate she gave
us was "way over the top", it was for a year of free family hair care. I can't even imagine
I will let her get away with us. I will let her do a few because she is stubborn like me but a
year is way too long. These days time is very hard to come by and it will take me a lifetime to
thank all the people that have prayed and donated time, goods or funds to Evan and our family.
I want to leave our stylist, our friend, part of our family with this message. "Please know
that Kelly and I love you much and we appreciate you for all you've done for us. Not just now
but always! You are truly a great friend!"
Saturday Evening April 10 - 7:00PM
Evan just finished dinner, got cleaned up and now is resting comfortable. Here's a new one
for me, pureed fish sticks. Hey, Evan liked them. He will hopefully sleep throughout the night.
Sunday's are the only day Evan can take it easy all day. He has a rather agressive therapy
session every day but Sunday. The harded he works, the quicker we will get to go home.
Saturday Evening April 10 - 9:10PM
Evan is still sleeping and looks like he's down for the night. Watching him sleep makes all seem
well with the world. Looking at my son, lying in bed, watching him breath in and out looks like
a Norman Rockwell painting. One of those perfect middle America family moments. As my
vision broadens, I realize his bed is indeed a hospital bed and he is indeed in a hospital.
And in order to leave this place, he will have to fight, he will have to struggle and he will
have to win! He can do it! With the so many people praying for him, I know he will recover.
I was reading an article about AVM's and strokes in children. The article stated that 54%
of pediatric stroke victims made complete recoveries within 1.6 years. Granted his AVM
bleed was much larger than the ones they spoke of, twice the size in fact. However, I must
continue to help Evan reach for the "brass ring". I have always taught him that hard work
will always prevail and I know he remembers it now. Tonight before he fell asleep, I was
talking to him and said "Evan, I'm so proud of you and love you so very much!" He smiled,
pointed to himself, then held up two fingers as if to say, "me too." In sickness and
in health, he is a great, wonderful, amazing, charming, caring, giving, loving son that Kelly
and I, for whatever reason, have been blessed with. There are
two things that I have held close to my heart throughout this traumatic time. First and
foremost, I knew that Evan knew how much he is loved by Kelly and I. Secondly, I truly felt that
Evan believed and trusted me when I told him each day "Don't be scared, Mom and Dad are right
here and you will never be alone at the hospital. We will NEVER leave you". Even when he was in
a coma, I know he heard and believed me.
Saturday Evening April 10 - 9:40PM
Word of Evan continues to spread outside the USA. I received emails tonight from the UK and
Australia. Both saying how they will pray for him and pass his information on to others.
With so many people praying, how can this thing not end in greatness.
Sunday Morning April 11 - 9:30AM
Well today is Sunday, Easter Sunday! It has now been three weeks today that all this started.
Considering where we were three weeks ago with a very dim out-look, we are thankful. Thankful
that our little buddy is still with us, still fighting and determined to get through this. He
slept most of the night and just finished one of his favorite foods, scrambled eggs with cheese.
Even thought they were pureed, he really enjoyed them. Topped off with thick apple juice. They
tell us the Easter bunny will be by today to see all the children. That should be exciting and
later Evan will have a Jacuzzi bath. I know he enjoys that. I hope this entry finds everyone
having a joyous Easter morning with family, friends and loved ones. Jenna and Kelly are on there
way and will be her within the hour so we can all be together. Family time has always been very
important in our home, now more than ever. I'll check in with you later. God Bless!
Sunday Afternoon April 11 - 12:00PM
Evan just finished his Easter lunch. Pureed turkey and gravy, mashed potatoes, orange
sherbet, fruit punch and chocolate milk. His appitite is definately getting
back to normal. After lunch, Evan is off to a Jacuzzi bath.
Sunday Afternoon April 11 - 12:30PM
I wanted to let everyone know that if you have recently mailed a card to Evan at Rainbow, you
may get it back in the mail. Rainbow informed us that they cannot forward mail to patients after
they get discharged. So if you do get your cards back, please mail them to:
The Rehabilitation Center For Children at The Cleveland Clinic
2801 Martin Luther King Jr Drive
Cleveland, Ohio 44104
Attention: Evan Goretzki - Rehab Unit
Sunday Afternoon April 11 - 4:00PM
Evan is sleeping comfortably after a long day of being awake. He woke up at 7:00 AM and
has been awake since. This is a new record for him. The old record was 5 hours in a single
day. Something pretty exciting happened today, well other than the
Easter Bunny coming to the hospital to see all the children. Evan got a pretty nice Easter
basket and a photo with ol' E.B. himself. Ohhh... back to the exciting stuff. Doctors had told
us that it may take Evan 3 or 4 months before he is able to open his right eye with any kind
of consistency. Today, Easter Sunday 2004, he opened both eyes together pretty much completely
and looked around a little. He was able to hold it open for about 8 seconds. He did this
many times throughout the day and it was
such a GREAT thing to see. Clearly he gets more and more back each day. We don't know how
long we will be in rehab but we certainly appreciate all of you being there with us.
Sunday Evening April 11 - 8:00PM
Evan will have his first of many busy days tomorrow. He will have 3 to 5 hours of therapy
per day including, physical, speech, occupational, recreational and eventually he will have
therapy in the pool. I told Evan again that the harder he works, the quicker we all get
to go home together. Evan is prepared to work hard and gave me a big "thumbs-up"!
Monday Morning April 12 - 8:00AM
Evan had a good night's sleep. He woke up and had a good breakfast. He will have a busy day
of therapy so he will need lots of energy.
Monday Afternoon April 12 - 3:00PM
The charge nurse of the floor informed us that Evan's Clinic Doctor was concerned about
the amount of fluids and calories Evan was taking in. They were also concerned about the
amount of liquid (urine) he was outputting. Even though it seemed like he was drinking
plenty of the thickened liquid, he was simply not getting enough and was beginning to
dehydrate. The big concern now was kidney failure. Evan had to get more liquid's in to
be able to stimulate his kidneys. It had been 24 hours since he last had been able to "go".
They informed us that Evan should be placed back on a feeding regiment and a feeding tube
would need to be placed back through his nose and into his belly. This would enable the medical
team to feed Evan directly into his belly while he slept. Even though I hated to see him have
to have another feeding tube inserted, I understood that it was medically necessary to sustain
a healthy lifestyle. This would also give him more energy throughout the day for therapy. After
some thought Kelly and I agreed that the tube could be reinserted. I told the nurse that I
wanted a few minutes to talk to Evan about this before they inserted it.
Monday Evening April 12 - 4:00PM
I went back into Evan's room and spoke to him in a soft but confident voice. I explained what
had been going on and in order for him to continue to get better, the doctor would need to
put a new feeding tube into his nose like the one he had last week. He obviously did not
want to hear this and looked at me so upset and scared. I explained that it was so important
to help him get better and the sooner he got better, the sooner we could all go home together.
He started to feel better about it and gave me a "thumbs-up" when I asked him if he could be
strong and have the tube put back in. I was very proud of him.
Monday Evening April 12 - 4:45PM
The tube went in virtually without incident. Evan was more bothered by the tape on his nose
than by the actual tube itself. As he laid there, I had to hold his arm so he would not pick
at it. If you remember, the original tube he had, he pulled out several days ago while still at
Rainbow. As I held his arm, he kept trying to pull at the tube. I finally said to him "Evan,
this is really very important and if you pull it out, they will have to put it in again. If it
has to be put back in, it feels even worse, please just leave it alone". He stopped resisting
and motioned for me to lean down to him. He does this when he wants to tell us something. As
I leaned my ear close to his lips, he whispered and pretty clear "sorry". I looked at him and
said "Evan, I am not mad at, please don't feel sorry. I love you so much and just hate to see
you struggle. I told the nurse no to the tube but than as she explained how serious it was, I
understood and agreed to it. You are so incredible and I just want to bring you home soon."
He again motioned for me to lean down. As I leaned closer to his face, he kissed my cheek.
I about melted. This poor child, struggling through the most difficult battle of all and felt
compelled to comfort me. What an amazing son.
Monday Evening April 12 - 5:30PM
The nurse came in again and stated that if Evan cannot "go" by 6:00PM, they wanted to put a
catheter in him. I of course was opposed to this. I had stated that he needed some time to
go. He just got the bag feeding going and needed some more time. After she left the room, I again
stood by Evan's side and said to "Evan listen to me very closely, I need to you pee. You have
to try
harder than every to pee or the nurse will have to do something else to you that you will not
like. Please try so hard to go, it's very important." Ten minutes later he had went and the
catheter would not be needed. I'm so glad he was able to go. I would have hated for him to go
through that again.
Monday Evening April 12 - 9:00PM
Evan is sleeping and hopefully he will stay asleep until morning. He had a very busy and
stressful day and needs some rest. He will have another busy but hopefully less stressful day
tomorrow.
Tuesday Morning April 13 - 8:30AM
Evan had a restful nights sleep. He woke up at 7:30AM and had breakfast. He still hates the
tube in his nose but hopefully he can get used to it somewhat. They tell us that it may only
need to be in 3 or 4 days. He will have another busy day of therapy and I'm sure he will work
hard. He is a real champ. I still can't get over him last night trying to comfort me while
he's in this condition. That really speaks about the kind of person Evan really is. A truly
loving child that so often, thinks of others before himself. There is a reason that he is this
way and it's these reasons that kept him with us. Evan has a lot of good to do in the world
and we all need people like him surrounding us.
Tuesday Morning April 13 - 10:30AM
Evan just got back from his physical therapy and Kelly went down with him. She had said how it
was so hard to watch him struggle and even cry as they worked with his arm. Doctors had told
us that his left arm may be stiff and soar from the muscles contracting and it is very
important to work that out each day. Even though it is difficult and painful for Evan, it is
so very important. Without the therapy his arm could stay in that position making it
nearly impossible to use in the future. Our hopes and prayers remain strong, that we will all as
a family soon, leave this place and be at home together.
Tuesday Morning April 13 - 10:45AM
I wanted to add this note. I have been getting a couple of emails wondering if we were still
updating the web site. A few of Evan's "supporters" had said they were not seeing any new
updates. Unless something happens beyond our control, we will continue to update this site
each day. If you are unable, or become unable to see the updates you may have to adjust your
browser settings. First try using the refresh button on the top of your browser. Click this
several times to try to load the page. If this does not work, you will have to go into the
"internet settings" and delete your "temporary or old internet files". Generally you can simply
click the "clear history" button and this will work. Good luck! If you use AOL and still have
problems, please email me and I will try to help.
Tuesday Afternoon April 13 - 1:00PM
After a good lunch and a busy morning Evan decided he had had enough of the feeding tube and he
pulled it out. Later he did feel bad about doing it especially when he realized nurses would have
to have it put back in later tonight. They only want to use it to feed him while he sleeps and
have regular food during the day. I use the term "regular food" very loosely, remember everything
is pureed.
Tuesday Afternoon April 13 - 2:15PM
The physical therapist took Evan to the casting room where he got to pick the color of cast
they would make for his left leg. He picked the color and came back with a green cast on his
leg. This would stay on about 2 days and then be cut off and used to make a splint. This splint
will then be able to be held on with elastic straps and he will ear it while he sleeps. This
will help keep his ankle and foot straight and not become deformed from the muscle tension.
Tuesday Evening April 13 - 6:15PM
Evan had a nice dinner of pureed fish sticks and Tater Tots. I took him in a 12 pack of
minute maid lemonade. By far his favorite drink is lemonade. Kelly had thought if he had
more things to drink that he liked, he would drink more. This proved to be an excellent
idea. He loved the lemonade and drank nearly an entire can before dinner.
Tuesday Evening April 13 - 8:30PM
Evan had his feeding tube put back in and did a GREAT job. Evan obviously does not like this
and knows he has to have it. Hopefully he will leave it alone tonight and not pull it out. Kelly
stays by his side and makes sure he does not pull it out and when he falls asleep, they will
restrain his right hand so he cannot pull it out during the night. I understand there could
be some serious concerns if he pulls this out while it's running. Should he pull it out just
part of the way, he risks letting the liquid run into his lungs. VERY dangerous so for
his own safety, they will restrain him while he sleeps.
Wednesday Morning April 14 - 8:00AM
Evan rested well last night and did not remove his feeding tube. He is doing really well with
tolerating it. We will have a busy day today with his many therapy sessions. He has a very
good attitude about therapy and has done great with participation and motivation. We are very
proud of him!
Wednesday Afternoon April 14 - 3:00PM
Due to Evan's condition, he was moved today into a new room. Currently it is set up for two
beds but Evan will be kept in a room by himself until they need to use that space. His neurological
condition is better suited to a quieter, less stimulated environment. During his occupational
therapy session, Evan actually ate some French Fries. Part of this therapy is re-learning
to chew and swallow. He did really well with the French Fries and ate about 15 of them.
Evan seems to be impressing many of his therapists and we pray he'll continue to give his all.
Wednesday Evening April 14 - 5:30PM
Since Evan did so well with chewing soft foods (he had only been allowed to have pureed foods),
the doctors let Evan eat some macaroni and cheese for dinner. It was small noodles but not
pureed. He ate most of his meal and really enjoyed the change in consistency. Way To Go Evan!!
Wednesday Evening April 14 - 8:00PM
Evan went to sleep and will most likely be down for the night. The extensive therapy really
wears him out and he deserves a good nights sleep. Each day gets busier and busier for him.
Each day brings a new challenge and a new opportunity for our champion.
Wednesday Evening April 14 - 9:30PM
Jenna and I just got back home, we spent most of the day with Evan and Kelly in Cleveland. When
we got home, I noticed that a large envelope had come in the mail for Jenna. Remember the Brother
Bear CD I was talking about the other day? Well two of the many supporters we have these days,
read that story and took it a step further. They went out and bought that CD and mailed it to
Jenna. They wanted her to know that while so many people are thinking about Evan, many people
are thinking and praying for her to. She was so totally impressed. In fact these are her words.
After Jenna opened her package, this sweet little girl looked at me with a sparkle in her eye
and said "Dad, I feel like I want to give a hug to a total stranger, this is so nice! I'm going
to listen to it right now!. Let me say to the two of you that sent this. This gift not only
touched Jenna, but me as well. I don't believe we've met and I don't think you know Jenna but
to do something like this was just "over the top". You are both wonderful and I thank you for
making Jenna feel so special at such a difficult time.
Wednesday Evening April 14 - 10:30PM
I almost forgot to tell you. The Candy Wrapper Lady has printed up candy bars with Evan's
picture and information on them. She is selling them to help with his fund raiser. You can view
and purchase these at her website which is
Candy Wrapper Lady.Com She gave me the set of four today and they are GREAT!!
Thursday Morning April 15 - 8:30AM
Evan had another good night. Nothing really to report other than he did leave his feeding
tube alone. It will be interesting to see what kinds of things he will eat now that he is
allowed to have some soft foods and not everything pureed. When Jenna and I left this
morning, I noticed that someone had mowed my lawn sometime yesterday. Whoever did it,
Thank You!!
Thursday Afternoon April 15 - 1:30PM
On the ride in, I called Kelly and asked her if she needed me to pick up anything on the way.
She said no but someone wants to talk to you. I listen closely and on the phone I heard a
"Hi Dad". It was a whisper but I still heard Evan on the phone. Once I finally made the
70 mile trip, I got to help Evan with his lunch. He had Spaghetti-O's (is this even a word?).
He really liked that and ate them all. He actually fed himself a few spoonfuls.
Thursday Afternoon April 15 - 3:30PM
Everyone tells us that Evan is doing a great job in therapy. Working hard and listening to the
therapists, which is the most important part. I think he will be going in the therapy pool
on Friday. Hopefully that is as fun as it sounds.
Thursday Morning April 15 - 5:20AM
When Jenna and I got home, I noticed a package on my door step. Once I got inside and opened it, I found a very thick binder with a picture of Evan on the front. Inside were
I found several hundred of the printed emails we have been receiving. A friend from Perkins
Schools had been printing them off for us. I would have been very grateful for the stack of
copies, but he put them all in protective plastic pockets and organized them by date and put
them all in this binder. Thank you!!
Thursday Evening April 15 - 6:00PM
After another big day of therapy and dinner, Evan is tired!! He will rest for a while, wake up,
talk hang out with Mom and then sleep some more. The big finale of The Apprentice is on NBC
tonight and I will be watching. Kelly and Evan are going to try but the smart money says they
will both fall asleep before it's even half over.
Friday Morning April 16 - 7:30AM
Well of course Bill won on The Apprentice. I bet the family 10 weeks ago he would win. Evan
slept well alst night, he woke up and had a good breakfast. Then off on his busy day of
therapy.
Friday Afternoon April 16 - 6:00PM
Evan had a good day. The feeding tube is still out and his appetite is getting better
each day. Today he actually ate a hot dog for dinner. I know, the mother of all foods that
that kids choke on, and I had to feed it to him. I think Kelly made me do it to test my
nerves (haha). I cut them in small pieces and he ate them all. He actually wanted
some more but they were all gone. Although they are small steps, he is getting better each day.
If it were just for the rehab, I would not worry, he is a fighter and I know he'll make it
through this. However, I still worry very much about those vessels in his brain. It could
be 5 years or more until those are completely gone and he is in the clear. We just have to keep
on praying for the rest of his miracle.
Friday Afternoon April 16 - 7:00PM
I was telling Evan that it would soon be time for me to go home. I had to let our dog out,
get Jenna and check on things back home.
Using his alphabet board, he spelled out "don't go". I reassured him that Mom would be
staying and I would be back in the morning and bring Jenna with me. He then spelled, "Please
don't go". Then Kelly started to give Evan some medicine and he spelled out for her
"Don't let Dad leave, Please don't let Dad leave". Was this a heartbreaker or what? I told
Evan that I could stay but Mom would have to go home. He smiled and gave a big thumbs-up! I
stayed and we had a fun night spelling on the alphabet board and having dinner together. It
was just the guys and I know he really appreciated it. I watched him as he fell asleep and
stayed by his bed side all night.
Saturday Morning April 17 - 8:00AM
I woke Evan for his medicine at 6:00AM, he took it and wanted to go back to sleep so I let
him. I let him sleep until 8:00AM when his breakfast came up. He ate, we got cleaned up,
dressed and in the chair. He would be going to therapy in a few minutes and he was
ready.
Saturday Afternoon April 17 - 2:15PM
Evan has been doing a GREAT job "turning his voice on" as the rehab team calls it. He can
actually focus, take a deep breath and say a three word sentence. He is not shouting but
he is not whispering either. Since Evan was done with therapy for the day, Kelly and I
decided we would take Evan for a short trip outside. They have several fenced in recreation
areas (like small parks). We went outside for about 15 minutes. It was beautiful day
and the sunshine did us all a bit good.
Saturday Evening April 17 - 10:00PM
Evan had another good day. I have to thank all of you for this. So many people are praying
for Evan and we know that's why he continues to get better each day. We have been on this....
journey and this is where we are in our lives. I have always believed that for the most part,
things do happen for a reason. I have yet to find Evan's reason for this but hope that someday
I will. I can't help but wonder/fear that the reason for this happening might be.... me!
I course know I did not cause this to happen and if you've been following this journal, everyone
knows that I deeply and unconditionally love my son. You also know that I would trade places with
him at any time. My point is this. Since this has happened, I have spoken to many people about
Evan and his condition and I have built this web-site to use as a sort of information link to
Evan's. I have thought about this web-site and what I will do with it when Evan is completely
recovered and we have done the final update. I had my answer in about 10 seconds. I will
maintain this web-site and be it's advocate for as long as I can. If this site runs
for 40 years and touches just one family in need, it will be worth it.
Sunday Morning April 18 - 12:00AM
I don't know how or when this ordeal will end but no matter what, I am a different person than
I was 30 days ago. Someday, I could even see myself speaking to groups
about Evan and what the power of prayer has done for our family. Please understand,
Tuesday March 23, 2004 was the darkest day of my life. The day medicine told me would probably
be my son's final day. The day Kelly and I stood, seemingly alone at the very edge of the earth and
tried to find something to hold on to. I looked and felt around and could not seem to find
anything. This was truly the day all of my fears came to life and were beating me down. Later
that night, I called North Carolina and spoke to one of my dearest friends. He talked me
"off the ledge" so to speak. My friend is brilliant and studies children's brain growth and
development. He has no idea the impact he had on me and what chain of events was about to unfold.
Finally, that night, I slept. It was maybe for only two hours but when I awoke, I felt like I had
slept for two days. I woke up and felt refreshed, 15 feet tall with my chest sticking
out. I felt that I was ready for anything and I knew, yes knew that Evan would be ok. Even now
as I write this, I am totally in awe of what had happened. Let me explain, well actually I
cannot explain. I have no explanation for why I had felt this way. What I can tell you is I
went to
sleep feeling very sad, feeling that I may wake up and my son may be gone. Sometime in the
two hours I slept, something happened to me. I do not know if God spoke to me or Evan called
to me saying "Dad, don't give up, I'm going to be ok". I don't know if one of you said a prayer
for us that hit me, bounced off and then fell over Evan... I just don't know. What I do know
is that Wednesday is the day everything changed. Evan's condition began to stabilize, and as
days passed, he
actually showed signs of improvement. Medicine told us there was nothing left to do. We asked
everyone we knew to ask everyone they knew to pray hard for a miracle for our son. All I can say
is "Something Happened.....Something Happened!"
Sunday Morning April 18 - 11:00AM
Since today is Sunday and it is the only day that there is no therapy. Patients are allowed to
sleep in as long as they want. Evan took advantage of this policy today. He did not wake up until
11:00AM. Now this sounds like the Evan I know! He woke up and ate a small lunch. He and Kelly
then went for a stroll around the hospitals vacant hallways and after a short walk, ran into
Jenna and I. We were nearing a corner and I said to Jenna, "Hey, that sounds like Mom's voice"
and sure enough, once we rounded the corner we saw them coming at us. It was a GREAT surprise.
Sunday Afternoon April 18 - 2:00PM
Evan decided he was ready for lunch, after all, Kelly pushing him around the hallways must have
been exhausting work for him (haha). After lunch, we headed out-side to enjoy some of this
beautiful day. Remember yesterday (Saturday) was Evan's first day outside in nearly a month.
It was far to nice to not go out and feel the sunshine. Evan's grandpa (papa), pushed him
around the courtyards paved walkways. It was wonderful and Evan enjoyed several trips around.
Evan began to tire and the sun was very bright for his weak eyes so we went back in.
Sunday Afternoon April 18 - 4:00PM
Evan had a surprise visitor today. Former Miss America, stroke survivor and motivational speaker
Jackie Mayer stopped by. We had not met her before but I can tell you she is a WONDERFUL
person and I know that Evan was meant to meet her. She spent over an hour with Evan and
offered him words of encouragement and praise. She brought him an autographed ball cap
and several books and articles for Kelly and I. Jackie, if... I mean when you read this, Thank
You so much for visiting our son and keeping him in your prayers and close to your heart. Evan
has had many terrific and much loved visitors. I can tell you that your visit today meant
so much to him and our family. He really enjoyed you and for whatever reason, seemed to
connect with you. Maybe it was just meant to be. You are GREAT! Thank You!!
Sunday Evening April 18 - 8:00PM
Evan had a busy day and enjoyed a big dinner. I had to come back to Sandusky with Jenna so
we could get ready for school tomorrow. Spring break is over! As soon as we got on the
highway, Jenna said out loud what I was thinking, "I already miss Evan!" It is difficult that
our family has not been "under the same roof" in almost a month but we all know that that
day is coming. Within 4 to 6 weeks we hope we will all be back home starting our family
recovery. Jenna is sad that she will not see Evan much this week. She is very active and
has after school activities nearly everyday. I told her that I would take her to see Evan
later in the week. In the morning, I will take Jenna to school and drive up and see him
like I do everyday!
Monday Morning April 19 - 9:30AM
I just arrived in Cleveland and was surprised to hear that Evan was in SCHOOL! Starting
today he will be in school Monday through Friday 9:00AM-11:00AM. This kid is busy! Other than
a short lunch break, he is busy with therapy or school from 9:00AM - 4:00PM. No more lying
around in bed for him (haha). Not that he really was anyway. He has been working very hard
everyday to get better. Evan understands and believes that to get better, he has to work and
work hard! He will make it, he has a great attitude and the drive to want to recover.
I told him today that in time, he will walk again and he will be able to use his hand again.
It may not be next week but it will happen. He smiled and whispered "Thank God!" We know
all the emotions and feelings are starting to catch up with him and we pray each night that
Evan continues to find the courage to press on. He is the BEST!
Monday Afternoon April 19 - 3:00PM
On Saturday night we found a package on our doorstep. This one was for Jenna. Inside we found
a huge kit of art supplies, two coloring books and a pad of paper. A note said that Jenna
could use this while traveling back and forth to the hospital. Anyone that knows Jenna,
knows this was a great idea. Jenna is very much the artist of the family. She is forever
coloring, drawing or making a "masterpiece". Thank you so very much for your gift!
Monday Evening April 19 - 5:00PM
Last week Evan had a visit from one of Kelly's dear friends. She brought a gift bag to Evan
filled with items he can use to help with recovery. Excellent hand/eye coordination toys and
activities. She also brought things for Jenna and Kelly and I. What she also brought was
something that could not fit in a box or bag. She brought hope and encouragement. See, many
years ago, 8 in fact, her son (at age 8) had a similar thing happen to him and suffered a massive
stroke as well. From what she tells us, her son was much worse off than Evan is. As bad as
Evan was, it is hard to imagine someone worse and still recovery, but he did. However, for many
years following his crisis, our family would always include a prayer for her son when we
sat down to dinner. Ironically, now some 8 years later, her family is praying for our son.
This condition does not happen very often and to have it happen to two families that know
each other is incredibly rare. I am very glad to say that her son has made a remarkable recovery
and I know that Evan will too. Thank you for your friendship and support!
Monday Evening April 19 - 5:35PM
Jenna just handed me a folded up letter that she got at school today. Inside
was a picture of two girls and a note. The note said. "These two girls had a car wash for
Evan on Sunday. We live on a quiet street so they didn't get much business but they really
wanted Evan to have this money". Inside was $11.00. In the Sandusky Register yesterday,
an article was printed about the strength of a community and how so many people have
come together to support Evan. This article was written for these girls and the so many
people in our community that have become
our "family". I'm going to put this picture on the fund raiser page. I hope it is ok with their
parents. If it is not, please email me immediately and I will remove it. I just really wanted
to share this with all of you.
Tuesday Morning April 20 - 8:30AM
Evan is doing very well. He is talking in full sentences. In fact he is talking so well,
they took his alaphabet boards away. He used these to spell out the words he wanted to say.
Even as his Dad, I am blown away at his strength and energy.
Tuesday Afternoon April 20 - 2:00PM
I Just left Evan and Kelly. I had to come back to Sandusky and pick up Jenna from school. I
can't believe how much he is improving each day. He is now completely off pureed foods and is
on what they call a "mechanical diet". He can eat solid, soft foods cut into smaller bites.
In the past couple of days he has had chicken nuggets, fish sticks, meat loaf, Tater tots, soft
tacos and hot dogs. This is huge. It has not even been a month since his stroke and he is doing
so many challenging things. The amazing surgeon from Rainbow visited the rehab center
today and paid Evan a visit. She was very pleased with Evan's progress. Hey... Who's Not??
Actually Kelly and I want to again thank Dr. Robinson for her amazing talent while saving
our son's life. God Bless You!!
Tuesday Evening April 20 - 7:30PM
Here comes another great Evan update. At the rehab center, they have these things called
"standers". It's a device that utilizes braces and straps and allows a child to stand up without
being held by someone (thus the name now??). Evan was in one of these today. WOW! I feel that
I may be using words like WOW, AMAZING and CHAMPION a lot in these updates! I hope you don't get
tired of them (haha). Evan will be using the "stander" at least 3 times a week. This will be
great to help "wake" those muscles up.
Wednesday Morning April 21 - 8:00AM
Evan has been in the hospital 1 month today! He has come so far. From everything, to nothing
and now on his way back again... Please God, continue to guide him to complete recovery! We
all need him so much!!
Wednesday Afternoon April 21 - 1:00PM
Since we all know now that Evan's favorite food is shrimp, guess what he had for lunch today!
That's right.. shrimp! I stopped by the newly opened Long John Silvers and took Evan some
breaded shrimp for lunch. By the time I got there and warmed them in the microwave, they were
good and soft and perfect for him. He really enjoyed them.
Wednesday Afternoon April 21 - 4:00PM
This morning Evan was sitting in the common area of the clinic where other patients and
hospital employees hang out. He was just a few minutes from going to his next therapy session
when he asked Kelly to take him back to his room so he could go to sleep. She explained that
she could not because he had to go to therapy soon. He persisted but soon realized Mom was
not taking him back to his room. So he sat there a few minutes and as people came by he said,
"Hey... could you please push me back to room 2?" It got to be funny and he laughed as he
asked with no one taking him to his room. He then, a little louder said "Nurse...Doctor".
What a jokester. Then as he was really enjoying himself, the therapist showed up and off he
went.
Wednesday Evening April 21 - 8:00PM
The better Evan feels, the more things (different things) he wants to eat. In the past
couple of nights, he has asked for shrimp, Trix cereal and even Slim Jims (gross). Tonight
he called and wants Kraft Mac & Cheese. I will find some of the single serving packs and
take those to him tomorrow. I'm glad his appetite is coming back! This is good as
he had lost about 10 pounds in his first three weeks in the hospital (which is a lot for
a 10 year old). He has since gained about 5 of the pounds back so he is eating
much better.
Thursday Morning April 22 - 10:00AM
Ok Ok Ok... We can all stop bugging Jim Brickman. Evan received a care package from Jim
Brickman today filled with all kinds of nice things including an personalized, autographed
picture. Evan loves it all! Way to go Jim... we knew you'd come through for Evan. Thank You So
Much!!
Thursday Morning April 22 - 11:00AM
Jenna has her first communion this weekend and with Evan now in the hospital, I would have stayed
with Evan and missed that. Jenna was disappointed that both Kelly and I could not be there. So
Kelly's aunt had a great idea. She would stay with Evan for the few hours that we were away.
Evan understood how important this was for Jenna and agreed it would be ok! Thank so much Aunt
Devera & Uncle Fred!!
Thursday Evening April 22 - 9:30PM
Jenna and I got back from Cleveland at 9:30PM and we were both so happy to see Evan. We actually
got to see him in the stander. If you've looked at the picture page today, you'll see the stander
and the visit that Evan had from Josie, the therapy dog. Therapy dogs come by weekly and the
children sure enjoy them.
Thursday Evening April 22 - 10:15PM
Kelly was telling me that earlier today when Evan was in his wheel chair they were talking.
Suddenly Evan asked her if she could leave the room for a minute. Kelly said "sure,
is everything ok?". He said it was but he just wanted her to leave for a minute.
She left the room and watched from the crack in the door. What she saw made her cry. She
watched as Evan struggled and worked to try to get out of his chair and into the chair
Kelly had been sitting in. She told me "It was so sad watching him try to do something
so simple and not being able to do it." After a minute, she composed herself and went back in.
Evan, still in his wheel chair with his right leg thrown over the side. Kelly asked him "are
you ok", he said "yes". She asked "did you try to get up?" He again said "yes, how did
you know?" She said "your leg is out of the chair and I guessed maybe you tried". He asked,
"why can't I move my leg and arm?" Kelly reminded him about the stroke and that the
muscles were weak and needed to be re-trained. With a sad and disappointed look on his
face he said "ohh, ok", and they moved on. Kelly told me it was the most difficult
thing to see and she could feel his frustration. It was so sad.
Friday Morning April 23 - 11:15AM
Kelly and I have just traded places. I will hanging out with Evan this weekend while Kelly heads
back to Sandusky to do some things and spend some time with Jenna. She also has to organize a few
details for this weekend. It's Jenna's first communion on Sunday and she needs to and WILL have a
BIG day!
Friday Afternoon April 23 - 12:15PM
I got here just in time it seems. One of the children gets to go home today so to celebrate, the
teacher here (he is WONDERFUL) invited all the children to a pizza party to celebrate. After all,
going home is a huge thing!! We don't know if it will be possible but Kelly and I would LOVE for
Evan to be home by his birthday, May 25th. That's just over a month away but who knows, with Evan
we've seen that anything is possible.
Friday Afternoon April 23 - 3:00PM
It is a shame that a hospital like this has to exist. It's sad that there is such a need,
after all, it's only children here.... However, it is so great that this hospital does exist.
And let me say that they more than simply exist. They work miracles here. Rainbow works miracles
everyday and saves children's lives. The therapists take children the next step and work
to give them back the lives they used to know. The therapist's here are amazing! I have never
met a group of people that are so devoted to what they do. I look at some of these children
and just hurt for them. I see the therapists look at these children and see what they will be
able to do and not what they cannot do. It does take a special person to be a child rehab
therapist and work in a hospital
like this. These professionals do more than just "work" here. This is a way of life for
them and all I can say is THANK YOU for being so great at what you do!
Friday Afternoon April 23 - 4:30PM
Since Evan is talking A LOT! I thought I would bring him a gift. I bought him a micro-cassette
voice recorder. This way he can continue to practice and strengthen his vocal cords. As he was
checking this gadget out (of course Evan and I LOVE electronics!) I went into the
bathroom to rinse out his lemonade cup and wash my hands. As I came out, I heard him talking into
the recorder "Hi Evan, how are you? Don't be scared and don't worry. There are a lot of very
nice people here that will take care of you and help you get better. Don't be sad, it will
be ok". This made me stop in my tracks and reminded me again what an incredible son I have!
Friday Evening April 23 - 10:00PM
Evan had another good day. Tonight while getting ready for bed, I was taking off his shoes and
socks. Evan said "hey Dad, watch my left leg." I watched as he turned his foot up straight in the
bed. Wow! I said "Evan, that was GREAT!". He said "wait, keep watching!" I watched as he lifted
his foot off the bed about. It was only about an inch but this was HUGE!! He had not done anything
like this before. What a milestone.
Saturday Morning April 24 - 9:00AM
Evan had a good nights sleep and woke up hungry for breakfast. I brought him some of his favorite
boxes of cereal in. Trix and Reese's Peanut Butter Cereal. Today he had Reese's. After breakfast, he
was off to physical therapy and then occupational therapy. That will give me two hours to get
his bed re-made with fresh sheets and blankets and straighten up his room a little.
Saturday Afternoon April 24 - 1:30PM
When Evan got back from therapy, we decided we would go for a walk, actually he got to ride
while I pushed. We walked the halls and noticed how sunny it was outside. I asked Evan if he
felt like going outside and he said yes. We took at least 6 trips around the sidewalk path, it
was beautiful day and we both enjoyed the fresh air. When we came in it was lunch time. Evan had
shrimp, French fries, orange Jell-O and today he wanted Pepsi to drink. I had been telling Evan
that this weekend I would show him his website. After lunch we went over to the Resource Center and
checked it out. Evan thought it was really cool and was excited to see his pictures on the internet.
Oh, Puppy was excited too!! Evan just left for speech therapy. Saturday's are less busy so it will
be the last thing he has to do today and no therapy at all on Sunday. It's a day everyone gets to
rest and take it easy. He is looking forward to that. We have Jenna's first communion tomorrow.
I will definitely bring him a piece of her cake. It was made by a dear friend who makes the absolute
BEST cakes... period. It is her business and we get her cakes all the time. In fact, I bet she has
made nearly everyone of Evan's and Jenna's birthday cakes so far.
Saturday Afternoon April 24 - 3:00PM
Evan is very tired and has just fallen asleep. I am so proud of the work he is doing here. It is
just amazing how far he has come in just 5 days. On Monday he was doing most of his
communicating with the spell board and thumbs up and down. Now he is talking non-stop. As you
know, Evan is very social so as we walk the halls, he says "hi" and "how are you" to everyone
he sees. It is so great to see him doing more and more each day. He still has some short term
memory issues but I feel those will come back. Importantly he remembers everything about his
life. He tells me jokes and makes remarks that we used to laugh about in the past. We even
have a secret handshake that only he and I know. He said "Hey Dad, secret handshake". I was
very surprised he still remembered it all. It has about 6 or 7 different elements and he went
through them without hesitation. He is the BEST!
Sunday Morning April 25 - 7:00AM
Evan woke up early today... like 5:00AM early. That was ok though, I was happy to wake up
to see him. We were getting ready for breakfast when he said, "Dad, pull the blanket off
my left foot". I did and then watched as he lifted his left leg up at least 6 inches off
the bed. He did this 3 or 4 times before I went to get the nurse. After all I did not want
someone to think I was just an over zealous Dad that was seeing things. When the nurse
arrived, Evan again lifted his foot 6 inches off the bed. WOW, this was HUGE! He was doing
this at his own control. This really was a BIG deal. Evan then began his day with two bowls
of Trix cereal.
Sunday Morning April 25 - 9:45AM
I will be heading to Sandusky soon to be with Jenna and Kelly on Jenna's very special day.
Remember, today is her first communion. So is so precious and as much as I hate leaving
Evan, I know that Jenna really wants Kelly and I both with her today! Kelly's Aunt and
Uncle will be spending the day with Evan and I know he is in great hands!
Sunday Evening April 25 - 10:30PM
What a busy day! Jenna's first communion was wonderful. My little girl looked like such a
sweet angel. I will put her picture on Evan's picture page in case you want to see her.
The day was almost perfect. To be perfect, we would have needed Evan there with us but we
all knew, he was there in our hearts and we felt him all day! After the mass, our family
met a Damon's for an early dinner. Then the three of us were on our way back to Cleveland
to see Evan. He had a great day too! Aunt Devera, Uncle Fred and Evan agreed they all had a
great time. They played games, went for a walk, or two and enjoyed the day. They were really
excited on how much he had progressed in just a week. They saw him last Sunday and he
was not really even talking much then. Now he's doing so much more. So the Goretzki's got
to have a good... no GREAT day! Jenna and I got back home about 9:45PM and she was right
off to bed. She was very tired from her big day! Soon I will head to bed too. Tomorrow will
be here soon and it all starts again.
Monday Morning April 26 - 10:00AM
Evan is having another good day. He slept well and woke up hungry.... always a good sign!
He will have is usual busy day of therapy. He has come so far in just a week. It is really
incrediable. Thank you everyone for your contiuned prayers... they are so much making a
difference in him!
Monday Afternoon April 26 - 3:00PM
What a beautiful day it is today. The sun shinning, the birds singing, the smell of clear
air and freshly mowed grass. Yes, I finally got my back yard mowed. We usually bag the
grass clippings and generally have 2 full trash bags from the front and back combined.
My neighbor mowed my front yard yesterday so all I had to do was the back. I had 6, yes 6
trash bags of grass when I was done. It was very deep and thick and I'm so glad I got
it under control. Thank you all for the many offers to mow my grass but rest easy, it's done.
Evan is of course doing great. He is hard at work today and knows the harder he works, the
sooner he get to come home, Ohhhh yeah... then we'll party!!!
Tuesday Morning April 27 - 11:00AM
Evan just got back from school, it's actually right across the hall. He really likes the
teacher, as he does with all teachers and likes to go! He is doing great in the class and in
therapy. They tell us that he is doing very well and are pleased with his progress! We do
not have any idea when he may leave this facility but are hopeful he will be home by his
birthday on May 25th.
Tuesday Afternoon April 27 - 1:30PM
So what's going on with this wheather today? Snow....Please....It's almost May!! I'm so
glad nothing stayed on the ground. That would have been hard to deal with.
Tuesday Evening April 27 - 7:00PM
Kelly and I would again like to thank the so many people praying for Evan and our family,
it means so much. The power of prayer has certainly been proven. Since Evan is not "out
of the woods" yet, please keep those prayers coming! We also want to say thank you to everyone
that has sent us gift's, helped out at Evan's fundraisers or done special things for our
family. The amount of support we have received has been incredible! Help has come from many
different places too. Our friends have sent gifts and support but so many people that don't
even know us have done amazing things! A group I am
unfortunately not familiar with sent us a very special gift card today from a local
grocery store. That was very generous and we thank you so very much!! There is simply
no way we could ever thank everyone that has done so much for us. All we can say is that
everything has been very much appreciated.
Tuesday Evening April 27 - 7:05PM
If anyone knows the names, address, and phone numbers of the girls that did the car wash for
Evan (their pictures are on the fund-rasier page), please email me and let me know. I have
something I want to send them.
Wednesday Morning April 28 - 8:00AM
Evan continues to improve a little each day. He still is not doing anything with his
left arm but everything else seems to be coming back slowly. We are very encouraged with
his progress. I have many things to do in Sandusky and sadly, will not be able to
get to see Evan today. I have to go downtown and fill out paperwork to apply for Evan to be
declared disabled. This is something I have not been looking forward to but I know
we have to get it started. They tell me it could take months before we get approved and
by the time we do, maybe we won't need it and can have it cancelled. I never in my life
imagined I would need to apply to have one of my children declared disabled...
Wednesday Afternoon April 28 - 3:40PM
I just got all my things done and can take a 5 minute break. Jenna will be home soon
and things will get busy again. We, like most of you, are a very active family. Jenna will
have homework, then dinner, off to PSR class and then home for some "her time" before
going to bed. I will be glad when her schedule slows down so she can enjoy one of these
beautiful days. Nothing would make me happier then to go upstairs, out the front door and
watch Evan and Jenna riding their bikes in front of our house. This may not happen for
a while but I have to believe it will someday!
Wednesday Evening April 28 - 11:00PM
I was not going to include this next entry because I did not want to "deflate" anyone
while Evan is on the road to recovery. I honestly do not know why I am typing it now. I
guess I feel that this web-site is like reality TV. The "camera's" don't take a break
and I have generally shared everything! Well here it goes..nothing major, just about a dream
I had had.
I was dreaming about Evan, dreaming about what was going on with him right now. He was
sick and in the hospital just like he really is. The dream did not vary the reality of what
had happened. As the dream continued, I awoke to the "buzz" of the alarm clock. I opened
my eyes, sat straight up in bed and thought "Oh my God, this entire thing has been a dream, a
very detailed, very sad dream and none of it had actually happened!"
I had thought that everything that had happened had only happened in my dream and that Evan
was ok and not in danger. I had to confirm this so I quickly got out of bed and went down the
hall to his room. As I turned the corner, hoping to see him in bed, I was hit with the
reality of what had happened. Instead of seeing him sleeping in his bed, I saw the
stacks of cards, gifts and posters that so many of you have sent. It was very.... well....
disappointing! Have a good night. I'll "see" you all tomorrow!
Thursday Morning April 29 - 9:00AM
Evan is off on another busy day of therapy and recovery. Evan was talking to Kelly early this
morning and had said "Mom, you and Dad are like the president and vice president of the
United States. You know, how you can never both be in the same place at the same time for
very long. It's like you being with me and Dad with Jenna or Dad being with me and you
with Jenna." It was a pretty good analogy and "classic" Evan!
Thursday Evening April 29 - 11:00PM
Jenna and I headed to Cleveland right after school today. We had a great visit and even got
to have dinner with Evan and Kelly tonight. We found out that instead of having therapy
tomorrow, the children at the center are all going to the Zoo. Evan very excited, especially
about seeing the elephants. It's funny that we have been to the zoo before and elephants were
never a big thing to him before except for once. I remember once when he had just turned 3,
we took him to the zoo right around his birthday. He talked and talked about seeing the
elephants and once we finally got there, the elephants were gone. Evidently something had
happened that year and 2 of the elephants got sick and maybe died. The remaining elephants
to kept away from the public for health reasons (elephants health reasons). It's interesting
that almost 8 years later he is again excited about the elephants. I hope the weather is good
and they have a great day!
Friday Afternoon April 30 - 10:00AM
Evan is very excited about going to the zoo today, they will be leaving the center after lunch.
I stopped by Meadowlawn School this morning and visited Evan's teacher and classmates. At
the center, all the children worked on various projects and put together a "school" newspaper.
It was excellent! I dropped off a copy to Evan's teacher that she could read.
Friday Evening April 30 - 7:00PM
I just spoke to Evan and he told me about the zoo trip. Jenna and I were at the store earlier
and I bought Evan one of those monkeys with the long Velcro arms that you can hang on stuff.
Well, all Evan talked about was a gorilla he saw at the zoo that was huge and impressive. It
thinks it's ironic that I decide to buy a monkey at the same time he is at the zoo seeing a
gorilla. I know, monkeys and gorillas are not the same but hey... they are from the same
family. At any rate, it was kind of interesting. Something gave me some insight I guess!
Friday Evening April 30 - 9:00PM
Evan just called back. He said he forgot to tell me what had happened at dinner tonight. Kelly
had a can of fruit punch with a straw that she was drinking and Evan was drinking his
thickened punch from his cup. Kelly went into the bathroom to get a paper towel and when she
came out, Evan had picked up her can and was drinking from the straw. They have not let him
do this yet because of his condition. Thin liquids and straw have been off limits because
they did not think he would be able to handle them. He did and he did well. He took 2 or 3
short drinks and had no problem. He still will not be allowed to have straws until they do a
"swallow study" on him to determine his full capacity but this is a pretty big deal.
Friday Evening April 30 - 9:30PM
Oh hey.... just in case you didn't look yet. I added a few new pictures of Evan and the therapy
in the pool. Check them out at the picture page!
Saturday Morning May 1 - 10:30AM
Jenna and I just arrived in Cleveland and Evan is away at therapy until 11:00. He will have
a shorter work day today. He has just 3 hours of therapy on Saturday's and no school, instead
of his usual 9:00 - 4:00 schedule.
Saturday Afternoon May 1 - 2:30PM
Evan had recreational therapy outside today. Surprisingly Cleveland did not get as much rain
as Sandusky did. They took a couple of beach balls outside and were hitting them back and
forth over the volleyball net. Evan though Evan was just using his right hand to hit the
ball, he was doing a really good job getting it over the net. After therapy and lunch, he
wanted to go back out side. We took him out and I asked him if he wanted to use the
wheel chair swing? This is a large swinging platform that can accommodate a wheel chair.
We loaded Evan onto it and started swinging him and he enjoyed it. The weather started to get
colder so we had to go back inside but we will do this again.
Saturday Morning May 1 - 9:00PM
Evan just called and said "Hey Dad, guess what I'm doing? I'm sitting on the couch (in the
family room) watching Uncle Buck (John Candy movie).!" Kelly had taken Evan into the family
visiting room, put in the movie and got Evan onto the couch. He really enjoyed this. In fact,
this was probably the most "normal" thing he had done since this whole thing had started.
Anyone that knows Evan, knows he loves to watch movies so this was a GREAT idea that Kelly
had!
Sunday Morning May 2 - 8:10AM
Evan is sleeping in today. Sunday's are a day when they let the children do whatever they want,
even if that means nothing! They're allowed to sleep in as long as they want they can stay in
bed all day if the choose to. Evan will have a bunch of visitors today so he'll will want to get
up by around 10:00AM or so.
Sunday Evening May 2 - 7:30PM
Jenna and I got back from visiting Evan and we had a surprise for him. We took Anne Davis, her
daughter Erin, son Robbie and one of Evan's friends Spencer with us. Evan was very happy
to see everyone, especially his buddies. He really enjoyed their visit and didn't want them to
leave. Evan had a good day and enjoyed his time of visiting and relaxation. Tomorrow will
bring the start of another busy week of exercise and therapy for him.
Sunday Evening May 2 - 7:45PM
Hey... If anyone plans on visiting Max & Erma's during Evan Goretzki Proceed Week, you have to
print and use the following coupon for the donation.
Please click here to get the coupon.
The promotion is May 17 thru May 20 for lunch or dinner. Thanks!!
Monday Morning May 3 - 9:45AM
What I thought would have been a quiet radio interview has become so much more. I assume
most of you heard me on WCPZ this morning at 8:30AM. I was on the Morning Mix with Randy &
Tasha, what great people they are! We talked about Evan and his condition and even had some
listeners call in, like Evan's teacher Tracy Plue and the class. They had the radio on in the
classroom so they could all hear me... trust me, the pressure was on!! Randy & Tasha invited
me back in a week or so for update and even asked if maybe Evan could talk to them on the
phone and they could put that on the radio. I just spoke to Evan about that and he was THRILLED!
He said "Oh my gosh... I would LOVE that!" He then gave me some news.... "DAD, I MOVED MY
LEFT ARM!!"
The left arm had been completly still since the stroke and he finally did it.... He actually
moved that arm...WOW! This is so AMAZING!!
Monday Evening May 3 - 5:00PM
Evan had a great day today! He is so excited about moving that left arm and his spirits are
so high right now. I just can't wait to bring that kid home!! Like I've been saying, his birthday
is May 25th and we would LOVE to have him home by then... we'll see! He continues to impress us
all everyday and I truly believe a full recovery is just around the corner. Evan certainly has
"the stuff" and I know he can do it!!
Monday Evening May 3 - 9:30PM
I just got an update on the Holdem Poker Benefit scheduled for Sunday May 16th at the Huron
Yacht Club. I understand registration is going very well and they expect to fill up quick.
I'm letting everyone know so you can get registered soon if you want to be in the game.
Terry Wiseman tells me it will be a lot of fun!! Visit the fund-raiser page to get more
information or click here to register.
Terry Wiseman at wisemnfive@aol.com
or Call Phone 419- 433 -7547
Tuesday Morning May 4 - 7:30AM
Today will be a long day. I will take Jenna to school then I'm off for a week in Cleveland.
Kelly and I are switching places and she will be home with Jenna and I get to hang out with
Evan. I can't wait to see him move that left arm!
Tuesday Afternoon May 4 - 1:15PM
Evan just had lunch and is on his way to speech therapy. He will be back in a few hours. He
did not see me walk in and I was tapping on his shoulder non-stop for about 15 seconds. When
he finally turned to look, he was surprised to see me! He said he thought it was the nurse
and was ignoring them to be funny!
Tuesday Evening May 4 - 8:00PM
After dinner, Evan and I played about 5 games of "Guess Who" and he won every game
but one. He's really good at that! After that we just hung out and did some guy stuff,
you know, changed the oil in the car, mowed the grass and had some beers. Actually we spent
an hour in the stander and then watched a movie, Dickie Roberts! But that's "guy" stuff too!
Hey.. even I don't change the oil in the car! Evan and I had a lot of fun tonight and
I am glad I get to spend some time with him the week. He is so much fun and has a great
attitude! Better than I think I would have if I were in his position.
Wednesday Morning May 5 - 8:00AM
Evan woke up at 6:45AM and we decided we would get up and start the day. We got dressed, got
out of bed and had some breakfast. This message is to all you Dads out there... do yourself a
favor and sit down with your son or daughter and have breakfast together. I know we are all
crazy busy but these simply things we don't take time for are the ones we miss the most
when they are gone. In our family, dinner time is sacred. We try to sit down togehter
every night for dinner and we turn the rest of the world "off". If the phone rings, we don't
answer it, this is our time! Also I want to share something else with you. Every night at
dinner we do "High Point...Low Point". We go around the table and each person tells what
his/her high point and low point was for the day. This is a great way for everyone to talk
about the day they had and we've done this for several years. In fact many of our friends
and family members now do it too. Try it tonight and see if it works for your family like
it has for ours.
Wednesday Morning May 5 - 9:30AM
Evan is in school now with Tadz. He is a GREAT guy and Evan really likes him. Even "Puppy"
gets to go to school with Evan. In fact Tadz just won an "Excellence in Teaching" award from
the Cleveland Plain Dealer. This is a really prestegious award and only 3 Cleveland teachers
a year are honored with this. He really is GREAT! For whatever reason, Evan has
always had excellent teachers. In our home town of Perkins, Evan has excellent teachers
year after year. Even now, his teacher, Tracy Plue in just the best. She is "top shelf"
and everytime I talk to her I can see why Evan loves her so much! His teachers have
actually made him like going to school. Teachers.... listen up! You are doing a fantastic
job and you may not notice it everyday, but you are so deeply impacting the life of a child!
Please never stop!
Wednesday Evening May 5 - 8:00PM
Evan had a busy day and is doing so GREAT! He spent the last of his many therapies in
the pool which he enjoys. He ate a great dinner tonight and is now enjoying a
Reeses Peanut Butter Cup Ice Cream Bar! In Evan's own words "It Rocks"! We will
watch the American Idol results show tonight and see who get's voted off. The
big one is tomorrow for the Friends Finale! Evan has been looking forward to this
all week.
Thursday Morning May 6 - 9:15AM
Evan woke up at 6:15 and was ready to start his day, which is odd because he generally
likes to sleep in. We ate breakfast and now he's in school. I understand
the whether is supposed to be very nice today... like maybe 80 degrees! I told
Evan we will be going outside later to enjoy some fresh air. He's is happy
about that. Although his attitude continues to be great, he is getting ready
to be out of here. I don't blame him, he's doing all the work and I can't wait
for him to get out of eaither! Let's see, how does that go........ "There's no
place like home... There's no place like home......rats, it didn't work! Oh
well, I guess we'll have to wait it out.
Thursday Afternoon May 6 - 1:30PM
After a good lunch, Evan is back in therapy. We have heard today that Evan may
not be home by his birthday. Right now were looking at early June. That
is not for certain but is the "best guess" right now. The problem is, he's
doing too good (haha)! The rule is, you stay here until you reach a plateau
and your recovery slows to a halt, then you go to out-patient therapy. As
long as you continue to improve, they keep you here to get the best possible
treatment and hopes for full recovery. So we'll stay here a few more weeks. If
Evan continues to get better here, we definitely want him to stay as long as
possible. After Recreational Therapy Evan will get in the pool for Water Therapy.
This is really good for his muscles and getting him fully standing on his own
two feet. After that, I think we'll get a snack and go outside for a little while.
Thursday Evening May 6 - 7:30PM
In water therapy today, the girls told me that Evan actually walked while in
the pool. They helped him of course but he was able to do it with some support.
This really is a great sign of things to come. We ended up spending about
45 minutes outside and the sunshine was good for both of us. After that it was
time for dinner and Evan was hungry. He ate 3 soft tacos for dinner. His
appetite is certainly returning to normal.
Friday Morning May 7 - 10:45AM
Another great night and all is well. Evan fell asleep at 8:20 last night and
missed the Friends finale. He was a little disappointed but I told him Mom had
taped it for him and we could watch it later. He was so tired, I hated to try
to keep him awake and he never would have made it to 10:00PM. He woke up
rested and refreshed at 6:15AM ready to start the day and had a big breakfast.
He's now in therapy and will be until 4:00PM.
Friday Morning May 7 - 11:30AM
I just got a great idea from a friend (Mary Anne Baxter) regarding Evan's
Birthday! Since it looks like he will still be at the hospital on his
birthday, we're going to have a "Card Party"! We'd like to ask anyone
interested to please mail Evan a birthday card to the
hospital. His birthday is May 25th and the hospital address is:
The Rehabilitation Center For Children at The Cleveland Clinic
2801 Martin Luther King Jr Drive
Cleveland, Ohio 44104
ATTN: EVAN GORETZKI
This way he will feel better about not being home on his special day. I told
him on Tuesday that whatever day we got to go home, that's the day that would
be his birthday and we would have the best birthday party ever! This is
a great idea, thank you Mary Anne!
Friday Evening May 7 - 7:00PM
Evan had a very busy and very exhausting day today. He really worked extra
hard in therapy and is now laying down watching a movie. He will have one
of his new favorite snacks later, a Reese's Peanut Butter Cup Ice Cream Bar!
He really enjoys these. I hope everyone is having a good night tonight and in
case I forget later, Happy Mothers Day to all the Moms!!
Saturday Morning May 8 - 9:30AM
Evan had to start earlier today than usual. Up at 6:30, breakfast at 7:15 and
therapy at 8:00AM. Generally therapy does not start for him until 9:00AM
but this weekend the schedules had to get shuffled around a little. We found
out this morning that Evan and another child are going on a field trip to the
mall, Tower City I think. Evan is done with therapy today by 11:00AM so
I think we're leaving right after that. I get to go too. Last night Evan
and I layed together in bed and watched the movie "Hot Chick." We both laughed
ourselves silly. I have really enjoyed being here with him all week. Each day
more and more of his personality comes back and he has always been a lot of fun
to hang out with. What's so amazing about Evan is that he does not sit back and
feel bad about not being able to use his arm and leg. He is more excited to show
everyone about the little movements he can make.
Later Mary from the Clarion called and said the spaghetti
dinner went very well. Evan even got to talk to Mary for a couple of minutes.
Kelly is in Sandusky this week so she stopped by the dinner too. She said the
hotel looked so nice and was "just filled" with people. She said it was very
emotional seeing so many people supporting Evan and felt so "warm and
comforted" by all the love in the room. Thank you everyone so much for all
you are doing for Evan and our family. Your support is truly appreciated and
we love you all.
Saturday Evening May 8 - 6:30PM
Evan is doing so well today. We enjoyed the trip to the mall and picked up a couple
of things for Mom for Mother's Day! Even loves to get the best gifts for his Mom. Since
we had to give it to her already, I can tell you about one of the gifts. In recreational
therapy, the therapist gave Evan a terra cotta pot and told him to paint it for his Mom
for Mother's Day. He secretly worked on it for several days and when finished, filled it
potting soil and a plant. He was SO proud of his work. I will post a picture of it on
his site tomorrow. I told him it will probably be Mom's most favorite gift ever! Of
course she LOVED it and will cherish it always.
I hear the spaghetti dinner and silent auction went very well. I spoke to Mary and Anne
and they informed me that so many people volunteered to help and so many people brought
in baked goods for desert. It is so incredible that so many people have come to the aid
of our son and family. I will never be able to thank you all for what you've done. I
would like to say thank you to all of you. Your compassion, love and generosity have been
such a "bright light" in a world that used to seem dark. God bless you all!
Sunday Morning May 9 - 12:05AM
It's early but it is in fact Mother's Day. Since this is a very special
day for Mom's, I would like to tell you about one. I would like to tell you about Evan
and Jenna's Mom. I can tell you that my these kids, have the best Mom ever! she is the most
amazing Mom I've ever seen. Being a great Mom is really about the little stuff. Everyone can
be there for school plays and dance recitals. But Kelly, she's different. Instead of
just coming to the recital, she will make up some special little gift for Jenna that
will make her day just so much better. Even after cheerleading clinic, Kelly will make Jenna a
spirit bag full of candy and treats, I didn't even know what a spirit bag was! She
takes the time to do all those little
things that many people over look. When she packs lunches, she puts a little note card with
the sandwich every time with a funny little message that just makes you smile reading it.
She has had lunch at school with both of them many times, gone on countless field trips, and even
volunteers in the classroom for a few hours each week helping out. She can fix any scratch,
scrape or sniffle. On top of all this she runs a pretty amazing taxi service. See,
Jenna is a very involved 8 year old. She has dance, tumbling, girl scouts, religion
class and the trips on over night excursions. Not to mention all the places Evan needs to
get to. Somehow she always knows the right clothes for school pictures, the best place to
put things in their rooms and just how to deal with whatever's going on. And as the Dad, I
know that I cannot connect the same way Kelly does.
No matter what the case, no matter how much Evan, Jenna and I hang out, when the
"hammer falls", Mom is needed. Kelly said to me last week, Evan needs me to be his care-giver
and you to be his best friend and do fun stuff with. It's so true. We do everything together
but when trouble brews, WE NEED MOM! I just wanted to let you know something more about this
amazing woman. The woman that is "Mom" to the most important people in my world. On top of
all this, I get to have this woman be my wife. She is so incredible and I love her so much.
She probably won't even read this until Monday afternoon when Evan is at therapy and she
has a "free" minute. Honestly she does not even need to read this to know how much Evan, Jenna
and I love her... we tell her everyday! Happy Mother's Kelly, I love you! And Happy Mother's
Day to all of you too. Have a very special day with your families! I want you all
to spend your time with your families today so this will be the only update for Sunday. Unless
of course something changes.
Sunday Morning May 9 - 12:15AM
Ok just one more quick note. After reading what I just wrote before this, I may have made
myself look bad. You may think I don't help out home. Well just let me tell you, I can't wait
to write about myself on Fathers Day! (haha). Have a F A N T A S T I C day!
Monday Morning May 10 - 10:00AM
Evan is doing great today. He's in therapy and we all know he will work hard. He clearly
understands that the harder he works, the sooner he goes home. Speaking of going home, Kelly
and I are planning a HUGE coming home/birthday party for Evan and EVERYONE is invited! We do
not have the date yet but we're thinking the first or second weekend in June. Obviously this
will be up to his doctors. We are really planning a massive celebration for Evan and we
want you all to be there! It will be at the Clarion and Kelly and I will provide birthday
cake for everyone. You have all done so much for Evan and our family and this will
be a great chance for everyone to see him. Please watch for updates by clicking on the link
below and PLEASE email me if you will be able to attend and how many in your party. We have
to order the cake soon.
Monday Afternoon May 10 - 3:45PM
I just added new pictures to Evan's picture page.
Tuesday Evening May 11 - 8:45PM
Sorry it took so long for this update. This was a crazy day with many things to take care of.
Evan did great today. Kelly actually took him outside in the stander and together they played
with a bottle of bubbles. Evan did really well and they made lots of bubbles together. Also,
Evan was able to sit on his hands and knees or as he called, "making a bridge with your back"
(face down of course). He said it was very painful and he cried but he was able to do it.
He is also re-learning to dress himself. He uses a device that holds a sock and he can then
pull it up over his foot with a rope. When he pulls it all the way up, his sock is on. Pretty
cool device. We're still planning Evan's massive homecoming party so please click the link
below to get all the details. We want EVERYONE to attend!!!
Wednesday Morning May 12 - 8:00AM
Evan had a great night and is getting ready to start his day. He is such an inspiration to me
and Kelly and to so many people in fact. He is just the best and continues to improve each day
surprising us with yet another amazing accomplishment.
Wednesday Evening May 12 - 10:00PM
These days sure seem busier and busier. After this week is over, things will slow down a bit.
Jenna's dance recital is this weekend and that marks the end of this dance year. PSR (religion)
class is over for this school year, tumbling is over and only one more Girl Scout meeting. I
think I can make it (haha). As crazy as this is, Evan is still working so much harder than I am.
His attitude and motivation are still very strong and each day that passes brings us closer
to coming home.