"For I will restore health to you and heal you
of your wounds, says the Lord" (Jeremiah 30:17)
Here are the events as they evolved on Sunday March 21, 2004, a day that has changed so many
lives forever.
Sunday March 21, 2004
At around 5:45 PM on Sunday March 21, 2004, we sat down to dinner. Evan had stated earlier
that he was very hungry. After taking his second or third bite he stated that "he just didn't
feel like eating". I asked him if he was hungry and he stated he thought he was but just did not
feel like eating. Kelly and I told him he could go back to the family room and play with his
toys and maybe later he would feel like eating. After a few minutes in the family room, Evan
called out that he was feeling "kind of dizzy". Kelly went to him, had him lie down on the
sofa and stated that she would go upstairs and get him a cold washcloth. As soon as she went
upsatirs, Evan called to me saying he felt that something was wrong with the one side of
his body. He said this in a slurred voice. I was in the kitchen at the sink and remember
thinking what I had heard did not seem right. I felt like I stood there for an hour,
reprocessing what I had just heard even though it was only about 1/2 a second.
As I turned to him, he was off the sofa and walking toward the kitchen. I noticed that he
was sort of "pulling" his left leg and stumbling as he moved closer. By the time our paths
neared each other I watched as my son collapsed to the floor. I called for Kelly and I picked
Evan up and carried him to the couch. As I lied him on the couch and comforted him, he said
to me, crying, "Dad, what is happening to me?"I said "I don't really know honey but don't
scared, we will be right by your side." Kelly (the great nurse that she is) checked him over
and we immediately decided to call an ambulance. While waiting for the ambulance, Evan started
vomiting. The paramedics arrived and assessed Evan's condition. They quickly made the decision
to transport Evan to Firelands Regional Medical Center. It seemed that more than a dozen
doctors and nursers tended to Evan and provided our son with excellent care. The emergency
room doctors informed us that Evan needed to have a CT Scan (a scan of the brain). Evan
remained unresponsive to the medical team and seemed to decline rapidly. He was shutting down
as we watched. The result of the scan showed that Evan had a very large, 6cm x 6cm, bleed
(about the size of a baseball) very deep in his brain which caused him to have a massive
stroke. I could see in the faces of every doctor and nurse in the emergency room that Evan
was in real trouble. They informed us that Evan needed to be immediately Life-Flighted by
helicoptor to Rainbow Babies & Childrens Hospital in Cleveland, OH. Moments later we were
informed that due to the high winds, the helicopter was unable to fly and a Life-Flight
transport team would have to travel to Sandusky and take him to Rainbow by special
transport ambulance. On the road to Rainbow, I-90 was closed due to an accident which forced
the transport to take a detour delaying his arriving to the doctors he so desperatly needed.
Sunday Evening March 21 - 11:00PM
Upon arriving at Rainbow, the doctors and nurses quickly assessed Evan and tried to stabilize
his declining condition. The medical team infomed us that Evan would need to be put on a
ventilator to assist in his breathing and he would need an MRI (a very detailed brain scan).
This MRI would give the doctors a much clearer look at Evan's brain.
Monday Morning March 22 - 3:00AM
After reviewing the results of the MRI, the doctors informed us that Evan had a tiny blood
vessel in the lower part of his brain that for no apparent reason started to bleed. The area
of blood was massive in size and virtually inoperable due to it's location. Although the amount
of bllod in Evan's head was very large, surgery was even more risky and was not considered an
option. About one hour
later, We were informed that Evan would need emergency surgery in order to save his life. At this
point Evan had a 50% chance of making it through the surgery.
Monday Morning March 22 - 7:00AM
After a couple of hours the surgery was over and Evan had survived. We were informed that he
was in a very deep coma and all we could do now was wait. Evan's condition steadily declined
as the hours passed and he fell deeper into the coma. The doctors and nurses worked tirelessly
well into the morning hours trying stablize his condition.
Monday Morning March 22 - 8:30AM
The doctors informed us that they were only able to reduce the bleed in Evan's brain
by 30 percent. All we could do now was wait. The next 72 hours would be critical for Evan as
that is when the swelling of the brain would be very dangerous.
Tuesday Morning March 23 - 2:00AM
Evan is resting and after nearly 42 straight hours, Kelly and I would try to sleep. We did
sleep for about 2 hours before we awoke and had to checked on our son.
Tuesday Morning March 23 - 5:00AM
Evan's condition was not improving and he was unresponsive to stimulation. The medical team
was very concerned by this and infomed us that we needed to be realistic about his survival.
Evan's condition did not improve as day became night and another day would pass.
Wednesday Morning March 24 - 4:15AM
Evan made it to Wednesday but with little or no progress to report and still deep in a coma.
The care Evan was
receiving from the entire staff was in my opinion "world class". Doctors, surgeons, nurses
and support staff did everything they possibly could to help Evan and comfort him during this
tramatic time. Even though Evan faces unbelievable hurdles, his parents, family members and
friends would not give up hope. Scores of people visited the hospital and seemingly thousands
of people of several states prayed for this 10 year old boy so many people love.
Thursday Morning March 25 - 5:00AM
Evan was in the fight of his life and his little body worked non-stop to try to repair itself.
He was still in a coma and was not responding. His parents stayed at the hospital around the
clock, sleeping for 2-3 hours per 30 hour shift. Softly, his parents speak to him, telling him
not to be scared, assuring Evan that they would not leave his side. His parents promised him
that he would never be
alone while at the hospital. As Evan's critical 72 hours had now passed, he would be soon on his
way for another CT Scan to check his brain condition.
Thursday Afternoon March 25 - 12:45PM
It happened! Evan reached up with his right hand and itched his nose! Not once, but TWICE!!
This was his first controlled movement. We were VERY EXCITED! Then if that wasn't enough,
one of his many wonderful nurses said to him "Evan, I'm going to put this tube down your nose
and into your belly so we can feed you ok? Evan, are you hungry?" Surprisingly Evan slowly shook
his head side to side as to respond No. Then his nurse stated "Evan, your Dad tells me you're
good with computers, do you like computers Evan?" Evan responed by gently moving his head up and
down as to say Yes. This was HUGE! Evan seemed to be finally moving in the right direction.
Evan's condition was still very critical but it seemed he was making very small steps of
progress.
Thursday Afternoon March 25 - 3:30PM
Evan had a huge surprise today. A package from the Cleveland Cavaliers was delivered to him and
inside was a video taped message from Cavalier rookie, LeBron James. Also inside was an autographed
message on Cavalier letterhead wishing him well. We can't wait until we can someday play it for
him. Evan continued throughout
the day on about the same path. His surgeon informed us that the swelling in Evan's brain
had only reduced by about 5 percent. They would have liked to see at least 20 percent.
Although he seemed to show some signs of progression, his doctors emphasized that Evan was
still in a coma which he may or may not be able to come out of. Also they did not yet
know the extent of brain damage he endured as a result of the devastating stroke.
Friday Morning March 26 - 5:00AM
While being examined by the surgeon, she asked Evan to raise his thumb. He did! She then asked
him to hold up two fingers. He did this too. This was truly a good thing. Not only is Evan still
making controlled movements but he is understanding and processing verbal commands. His movements
have all been with his right hand and it appears that Evan has no use of his left arm, hand and
leg. Evan has taken some big steps but recovery is still uncertain. His body is fighting but he
cannot seem to break out of this coma. The doctors tell us they are still very concerned about
this and only time will tell.
Friday Evening March 26 - 6:15PM
Evan felt the discomfort of the ventilator tube and reached up and tried to pull it out. This was
a good sign. Not only is he feeling the discomfort of the tube, but he is still making controlled
movements as a result.
Friday Evening March 26 - 7:00PM
Evan's parents had a great surprise. While holding his hand, the nurse said "Evan, squeeze
your Mom's hand" and he did! It was soft but a squeeze none the less.
Saturday Morning March 27 - 5:15AM
Evan had a restful night and seemed to continue in the right direction. He is scheduled for
a chest x-ray so they can make sure his breathing and feeding tubes are in the correct position.
His parents feel strong and continue to pray around the clock for a full and complete recovery.
Saturday Morning March 27 - 8:00AM
One of Evan's surgeons was in and assessed him. His doctor felt positive that Evan's condition,
while still very critical was showing small signs of improvement. They have said that we would
not do too much this weekend but would allow Evan to rest and work on getting stronger before
any additional tests would be scheduled for later in the week.
Saturday Afternoon March 27 - 3:15PM
I was in Evan's room holding his hand and talking to him when suddenly I felt him squeeze
my hand. It was a hard squeeze and felt WONDERFUL! He has been resting comfortably this evening
and we are hopeful that he has a restful night.
Saturday Evening March 27 - 9:15PM
While it is true that we have been very excited about Evan's progress, we were informed of
some strong realisms. The amount of brain damage is unknown and we won't know until
Evan wakes up. It is possible that Evan will never walk again or use his left arm/hand. Evan
may face issues with long term memory, speech and even personality change. We simply do not
know and must continue to pray harder than ever for his miracle.
Sunday Morning March 28 - 6:00AM
Evan seemed to rest well last night. He is still in the coma but not as deep as he once was. He
looks peacful while he sleeps. The doctors have said they may back down some of his medications
today to see how he responds. Please keep praying for Evan as he fights these difficult battles.
Sunday Afternon March 28 - 3:00PM
The doctors tell us they may remove Evan's ventilator today to see how he responds. Evan has been
doing most of his own breathing these past couple of days. They do however caution that should he
not respond well, they may have to put him back on the ventilator.
Sunday Evening March 28 - 5:45PM
Evan's vital signs have been elevated. The doctors decided with his blood pressure and heart
rate so high, they did not want to try to remove the ventilator tonight. They will assess him
again on Monday morning.
Sunday Evening March 28 - 7:30PM
Kelly and I were at a point where we were feeling down when suddenly we got a message from
Kelly's sister in Pennsylvania. She had heard that Dateline was featuring a story on
"Miracles After A Brain Trauma". We watched and saw the miracle. We believe God is sending
all these signs of hope when we need them the most. God Bless!
Sunday Evening March 28 - 10:30PM
Kelly and I logged onto Evan's web site and checked for e-mail. We were happily surprised.
We just put the site up today and already had 24 messages from friends, family and well-wishers.
We enjoyed reading them and when
Evan is ready, we will read them to him. Thank You All!
Monday Morning March 29 - 6:55AM
We've been here for a full week now and in many regards it seems like months. Evan seemed
to have a restful night but they say he still faces several huge battles. They will assess
him this morning and again attempt to remove his breathing machine. We do believe that Evan
is in the midst of a MIRACLE and ask that everyone pray for him as strong as ever. Evan
needs us all now!
Monday Morning March 29 - 11:50AM
The doctors just removed Evan's breathing tube. He did wonderfully. They caution that should his
condition change, he may need to have it put back in. If he does ok without it for the next
8-10 hours, he should be in the clear of not needing it again.
Monday Afternoon March 29 - 12:30PM
Evan just had his first sponge bath and he'll be happy to know it was from a cute nurse. As she
bathed him she asked, "Evan, how old are you?". He softly whispered "10." She then asked, "Do
you know where you are?" He again whispered "Hospital". This of course is HUGE! We are so excited
to see this type of progress. Also impressed were his doctors. In fact more doctors saw Evan
today then usual. I think everyone is impressed.
Monday Evening March 29 - 7:40PM
After a busy day of taking care of things in Sandusky, I finally made it back to Cleveland. Even
though I was only gone for about 10 hours, I missed him much. When I saw him tonight, he looked
incredible!! I still believe we are in the middle of our miracle. Please everyone... Keep Praying
For Him!!
Monday Evening March 29 - 9:50PM
Kelly and I just logged on to see if Evan had any emails tonight. WOW, 164 messages (and that's
just today). Please understand that it is not possible for us to respond to every email but
know we are both so moved by the support. Kelly & and I feel the love and comfort of our
community and truly feel blessed that so many people continue to pray for Evan.
Truly, Thank You! God Bless You All!
Tuesday Morning March 30 - 8:00AM
Evan's doctor was in and stated that he was pleased with his progress. Another MRI is scheduled
for Wednesday or Thursday to see how his brain is recovering. Should the MRI result look
encouraging, another surgery may be scheduled to try to correct the malformation.
Tuesday Morning March 30 - 9:20AM
While Evan's Physical Therapist was in, she asked him to turn his head and look at her.
Of course he did! Then I was talking to him and asked if I could "give him a kiss."
He slowly made a slight kissing motion with his lips. It was so AMAZING! I of course
I gave him a big kiss! Then Mom, being the nurse she is asked Evan if we could "throw you
in the shower?" Without hesitation, he shook his head NO! (haha) Now that sounds like Evan!!
Tuesday Afternoon March 30 - 12:15PM
I walked back into Evan's room and what a surprise I saw. Evan was not in his bed! He was
sitting in a chair next to his bed. The nurse thought he may be more comfortable sitting
for awhile. The physical therapist was working with Evan's arms and legs. It was great to see
his progress.
Tuesday Evening March 30 - 4:00PM
Well, Evan is now totally running under his own power. They have removed all his
tubes, lines, feedings, leads and everything. Yes guys, he had to have a catheter. I can't
wait to have to explain that one to him. Today was another great day. Evan had visitors from
speech and musical therepy and Kelly spoon fed him an orange popsicle (his favorite). He really
enjoyed it. It took a little while for him to get it all down but still certainly moving in
the right direction. Please keep the prayers coming, he still has a long road ahead.
Tuesday Evening March 30 - 8:20PM
Someone said to me "You know Jeff, all these people
praying for Evan are praying for you and Kelly too." My response was "All I want in the
world is for my son to come back to me complete. If people pray for him, they are praying
for me more than they know."
Tuesday Evening March 30 - 9:00PM
When I built this website, I hoped to use it to pass accurate information to friends, family
and well wishers. I had no idea the impact this would have on peoples lives. This site went up
on Sunday afternoon, just 2-1/2 days ago. I just logged on and so far we have had over 500
email messages and I can only imagine how many thousands of hits. Wow, we are so moved by this.
So many people are pulling together for Evan, I cannot tell what this means to us.
Tuesday Evening March 30 - 10:25PM
As I sit in a dark corner of Evan's room listening to the piano cd he made for his Mom,
I struggle thinking about this entry. I am only including this because I find so
much therapy in writing this web site. We are using so many of you for support and we thank you
so much for all that you are doing for us. While Evan is showing signs of improvement, it is still
very hard. We feel so much sorrow for our young son, lying in a hospital bed instead of playing
with his friends at recess. We both were overcome tonight and as we prayed we wept. We are so
grateful that Evan is continuing his recovery but still feel so much anger and remorse for what
has happened. He surely does not deserve such a fate and we pray and pray for him. As his father,
all I want to do is put my arms around him and take his hurt away. I would lie down for him
without remorse so he could walk out of this hospital today. Kelly is a nurse, a great nurse and
feels so sad that she cannot put a "bandaid on his scratch" and send him back to playing. We are
trying so hard to be strong everyday but it is so difficult. I know we have asked you all for
so many prayers but please continue to pray for his complete, speedy recovery. Remember what
I had said a few days ago. When you talk to God, be very specific. Ask him for exactly what
you want. This will be our last update for tonight... God Bless You All!
Wednesday March 31 - Morning 6:20AM
Evan seemed to have a good night. He rested well and was not so restless as he had seemed
before. We hope and pray he will open his eyes wide and say "Let's go home." Soon our daily
ritual will begin. It's a quick breakfast and then off to the chapel before returning to Evan's
bedside.
Wednesday Morning March 31 - 8:45AM
Kelly just left for a short trip to Sandusky. She has an appointment and will be stopping
at Meadowlawn. Kelly has agreed to speak to Evan's classmates and give them an update on
how he is doing. She will be available for any questions they may have about Evan (aka Jimmy).
I would explain that "Jimmy" thing to you but I have no idea what it means. Something he
and his buddies started. Then she's off to Furry School to have lunch with Jenna before she
comes back to Cleveland.
Wednesday Morning March 31 - 10:30AM
I'm sitting here alone with Evan. Occupational Therapy just spent about an hour
with him working the muscles in his arms and legs. He's sitting next to me in a chair
sleeping, which is really a big deal. Just a week ago, doctors did not think he'd make
it this far. There is no doubt in my mind that Evan will make a complete
recovery. I've prayed for a miracle and that's what I believe will happen. God Bless!
Wednesday Afternoon March 31 - 4:30PM
I just checked Evan's emails and got some great news. Bryan Brace from the PFD wants to make
Evan an honorary Perkins Township Fire Fighter. Bryan said "He has the heart and desire to
be one." We think so too Bryan. Thank you so much! This will mean so much to Evan.
Wednesday Evening March 31 - 5:00PM
Evan is so tired today. Physical Therapy gave him a really good work-out. He will probably sleep
the rest of the night. He seems to be doing well and moving in the right direction.
Wednesday Evening March 31 - 7:30PM
Kelly just got back from her busy day in Sandusky. She was able to have lunch at Furry School
with Jenna and then met with Evan's classmates. Kelly tried to help Evan's friends understand
what had happened to him. The class had many questions, including "what is a stroke", "can he
talk", and "will he be able to come on our field trip in April?" Kelly, delicately answered the
classes' questions and
explained that Evan still has a long recovery process. She then gave all the students a
badge of Evan which the they loved. Some students even offered to pay for them. We of course
would not let them. To finish off the visit, Kelly played the LeBron video for the class, they
thought that was "really cool".
Wednesday Night March 31 - 11:45PM
Evan was a little upset. He was lying in bed, semi-awake and I noticed a single tear running down
his cheek from his left eye. Since it is hard for Evan to speak, I have woked out a system with
him. I told him to squeeze my hand once for yes and not at all for no. I took his hand and
asked him if he was hurting. He responded with a one hard squeeze. Then I asked him where it
hurt. He squeezed once for head and once for belly. I asked the nurse if she could give him
something for pain and she did. I then spoke softly to him until he fell asleep.
Thursday Morning April 1 - 2:00AM
Kelly was sleeping by Evan's bedside, as she always does, when she heard him softly moaning.
Kelly asked him if he hurt anywhere. He pulled up his right arm and pointed to his head saying
"headache." As he did this he was crying and the nurse had placed a cool washcloth on his head.
She quickly contacted the doctor and he ordered some pain medicine for Evan. Soon after, he fell
back asleep.
Thursday Morning April 1 - 6:30AM
Evan just got back from his CT Scan. We won't know the results until later this morning. He is
still resting comfortablly from the medicine this morning. Although it is so very hard to
see Evan in pain, doctors tell us that it is a good sign. It's encouraging that Evan is able
to distinguish when he is having pain and communicate that to us. Please remember to pray for
Evan today. God Bless!
Thursday Morning April 1 - 10:30AM
Evan just finished his physical therapy for today and now he's sitting in a chair next to me.
I talked to him about the camping trip he and I went on last summer. He smiled and laughed
while I spoke of the beating that mother nature inflicted upon us (it was raining so hard it
was coming down sideways). We really took a beating and only made it the first of 4 days but
in the end, we had a great time.
Thursday Morning April 1 - 11:50AM
Evan is still sitting in his chair and will stay for another hour or so. He will get a visit
from occupational therapy at 1:00PM to assess his ability to chew and swallow. I'll let you know
how that goes. Keep praying for him, he still needs us all!
Thursday Afternoon April 1 - 4:00PM
We had a visit from musical therapy. The therapist came in and was playing Evan's favorite songs
on the keyboard. She played happy birthday and when it ended, Evan reached up with his right
hand and played a few notes of the song. It was a very moving experience. Way to go Evan!!
Thursday Afternoon April 1 - 1:50PM
Evan had his food assessment. He did well with thickened liquids, applesauce, and jello. He is
not ready for thin liquids (like juice or water) and no solid food. The doctors talked about
Evan possibly needing a surgical procedure to insert a feeding tube into his stomach. The line
through his nose is really only a short term correction and a feeding tube is needed for
nourishment.
Thursday Afternoon April 1 - 4:00PM
Evan is making progress and I am so grateful for that. It is just so hard to see my son, my best
friend in the world laying in that bed going through this. He worked so hard today in therapy
and I hate to see him struggle. I love him so much! God bless you Evan!!
He is fighting so hard and it reminds me that I have to be strong, strong like Evan is.
I've spent almost 11 years teaching Evan new things and now he's teaching me.
Teaching me to be strong and never stop fighting and I won't. I will fight for him...forever!
Thursday Evening April 1 - 6:00PM
Kelly and I may soon be faced with yet another very difficult decision. Doctors tell us they
are now considering taking Evan back to surgery in an attempt to fix the vessel in his brain.
The surgery itself is risky. Any surgery deep within the brain has great risks, not to mention
adding to the swelling condition he already faces. However, the blood vessel is still intact,
it's not currently bleeding but could again. Doctors tell us it would be a "lifelong" concern.
It could bleed again in days, weeks, months, years or maybe never at all. There is simply no
way of telling. The doctors are not ready for the procedure yet so Kelly and I do not have
to make that decision right now.
Thursday Evening April 1 - 8:00PM
Evan is still sleeping. Generally he sleeps about 22 hours a day. The other two hours are spent
with physical, occupational, speech and music therapy. They really wear him out and he sleeps
a lot.
Thursday Evening April 1 - 10:30PM
Evan just had some Tylenol for pain and we re-positioned him in bed. Hopefully he will sleep
until morning.
Friday Morning April 2 - 1:00AM
Evan is still asleep and Kelly is finally too. I find myself tired but unable to sleep. I watched
Evan as he slept, watching him breath in and out. What a beautiful site. It's something I've
seen a million times but never really noticed before. He looked warm so I cooled a wash cloth and
placed it on his head, he always liked that at home too.
Friday Morning April 2 - 2:30AM
I decided to log on and check some emails. I believe the total so far is more than 600 and I
can say with all honestly that I've responded to nearly all of them. It's very comforting for
us to read the messages of hope and prayer from so many of you. God Bless!
Friday April 2 - Morning 6:45AM
For the most part, Evan did sleep throughout the night. In fact, he is still sleeping. I just
ordered him some breakfast. I ordered pureed scrambled eggs, applesauce, pears and thickened
apple juice. Kelly or
I will feed him and I'll let you know how he does. I finally went to sleep around 3:00AM or so
after reading so many touching emails. Thank you for your messages of hope and prayer. Kelly
and I really do enjoy reading them. I will be printing them all off this weekend while I'm home.
I've never printed 600+ emails at one time. I hope my printer can keep up. I will send another
update when I have some news. God Bless!
Friday Morning April 2 - 8:30AM
Evan just ate his breakfast and did a great job. Kelly fed him the thickened apple juice and
orange juice. He did not really like the eggs. He has been doing so well this morning. He was
awake for about two hours and was really alert. His first words of the day were, "Hi Mom" and "Hi
Dad!" That was really good. Then I leaned down and gave him a little hug and he put his right
arm around me. This was really GREAT!!
Friday Morning April 2 - 11:00AM
Kelly just got a call from Channel 5 News. They want to come up and interview us. I'm not sure
of all the details but I will let you know.
Friday Afternoon April 2 - 1:00PM
It has been such a busy day for Evan. It was so nice spending more
"awake" time with him. Evan got a few visitors today including Kim Vacca and Mr. Jude Andres.
Jude is Evan's principal at Meadowlawn School. Kelly and I cannot speak highly enough about
the support we are receiving from Jude and the school district. We are surrounded by amazing
people doing amazing things for Evan and our family. Thank you all for your support!
Friday Afternoon April 2 - 3:00AM
Kelly and I were just interviewed by Channel 5 news. They did a story about Evan's rare condition
and this tragedy that has changed his life. I don't know when it will be on but Channel 5 News
is at 5:00PM, 6:00PM and 11:00PM.
Friday Evening April 2 - 5:00PM
Evan had a great therapy session today. His therapist is very pleased with his progress (of
course we are too). Let me know if anyone see's Evan's story on TV tonight. Thank you all so
much and please keeping praying for Evan!!
Friday Evening April 2 - 8:30PM
Kelly and I are very proud of Evan and all his hard work today. We were just settling him in
(for the night we hope) when I looked down at him. I said "Goodnight Evan, here's your best
friend puppy" as I put his arm around his friend (a small animal Evan has had since almost
birth). I then said to Evan, "You're my best friend and puppies your best friend". I
watched as Evan pointed his finger straight up at me as to say, "No dad, you're my
best friend." What a kid!!
Friday Evening April 2 - 9:30PM
Today was definately a day to remember. Evan is amazing! His strength and determination has been
proven and he will conquer this. I have no doubt! He still has many battles and still needs our
prayers so much. I know we've asked you for so many already but please please continue to pray
for Evan. He still has much to do and needs us all.
Friday Evening April 2 - 10:20PM
Everyone's asleep, the hospital is quiet so it's just you and me again. I've told you that
the nights are harder here when you're alone with your thoughts so please bear with me.
So many people have asked me one specific question and I have not yet been able to answer them.
I think now, maybe I can. The question, "With all that is going on, how do you feel?" More than a
hundred times I've said the same thing, "I don't know". I think I can now give more of an answer.
I've described this feeling as: "Every emotion you have, running full power, all at the
same time". You feel so pulled in every direction. Celebrating the small steps but still
wondering why Evan has to be here in the first place. Knowing that a miracle is happening
but hurting that your only son is in pain. Warmth in your heart when you hear him laugh while
that same heart breaks wide open watching him struggle. Smiling at his beautiful face while
tears of unthinkable size build up behind your eyes with wonder of why. Everything I new about
crisis management and problem solving would not help me here. This was something new, something
I would have to understand and something that would, and has found its own solution. I've been
calling Evan my son for so long and now so many of you feel he is part of your family too. For
that I thank you so much.
Friday Evening April 2 - 11:30PM
I feel I must share something I've learned recently about people. I've never set out
to make an impact on people or make myself feel better about helping others. I've been a
pretty genuine person my whole
life and just treat people like I'd like them to treat me. These days, so many people have
said to me "Jeff, you've done so much for us in the past, please let us help you now." I know I
have done things to help others but those things seemed natural to me and not life changing.
I was wrong. People have reminded me of things Kelly and I have done that has made an
impact on them. So many of us have learned so many things about ourselves and others this week.
Small things like a kind
word or gesture speak miles to others. I want to leave you tonight with an email I had received
earlier. I will not use anyone's name but will share the story. The writer states, "I was at
Firelands Hospital with my daughter when your son came in. I saw so many people working around
his room and knew that little boy must be in real trouble. I stopped what I was doing and
prayed for him because I knew he needed me to. Now my entire family prays for him everyday." I
sent a message back to her and I hope she does not mind that I shared this story. Here was a
person
with her own worries, her own sick daughter and still she took time out to pray for a child
she never even met, my child. I told her that someday I would like to meet her and I would
love for her to meet Evan. Thank you for being such an inspirational person.
Saturday Morning April 3 - 9:30AM
Evan slept fairly well last night. He woke a couple of times needing some pain medicine
but for the most part rested. Evan woke up around 7:30AM and shortly after Kelly gave him
some breakfast. He had thickened apple juice, vanilla pudding and few bites of orange jello.
Rainbow is filled with so many wonderful doctors and nurses, these professionals truly want
to be here and it shows in everything they do. We so respect their knowledge and compassion for
our son.
Saturday Afternoon April 3 - 12:30PM
Evan had another great therapy session and now he's sitting beside me in a chair. He's sleeping
but I still feel great just sitting with him. His pureed lunch will be here soon and we will
hopefully enjoy it.
Saturday Afternoon April 3 - 3:30PM
Evan is so tired right now. He is sleeping comfortably. To look at him sleeping, you
would never know he had anything wrong. He is great and we can't for him to wake so I can talk
to him again.
Saturday Evening April 3 - 6:35PM
Evan just finished his dinner. He had a few bits of chicken pot pie (pureed of course), thickened
apple juice and frozen lemon ice. Kelly fed him and he did a really good job chewing and
swallowing. He ate more than he has eaten in 14 days. We're so proud of his hard work.
Saturday Evening April 3 - 9:00PM
Evan is sleeping and hopefully will rest throughout the night. As he sleeps, his Mom and I
continue to pray for his complete recovery. Please keep praying for Evan.
Saturday Evening April 3 - 10:00PM
I'm heading back to Sandusky tonight. I have a few things to do at home (laundry ect...) and
then I'm going back to Cleveland with his sister Jenna around lunch time.
Saturday Evening April 3 - 11:15PM
I've been telling you all along how amazing everyone has been with Evan and our family. I was
driving Kelly's car and When I arrived home last night it was raining. I noticed that on my
truck windshield was an envelope. The envelope was dripping with water. I took it inside and
opened it. I was surprised at what I found. Inside was a hand written note stating "Our prayers
are free but gasoline is not". This was all it said and contained no name or address. The
envelope contained $50.00. We were very moved by this anonamous gesture. Kelly and I would
like to thank this person and the so many people who have sent cards, gifts, well-wishes and
of course prayers. We would also like to thank the many people back home that are doing so
much for Evan and our family! Thank you all so very much!!
Sunday Morning April 4 - 3:00PM
Evan has grown tired of the feeding tube and at 3:00AM, pulled it from his nose. The remaining
fluid drained from the bag all over him and his bed. Evan was upset and after a quick clean-up,
the nurse tried to put the tube back in. Evan was very reluctant in allowing this to happen
and after several attempts, she contacted the doctor, he ordered it to be left out.
Evan calmed down and went back to sleep.
Sunday Morning April 4 - 8:00PM
Evan had a good breakfast today. Kelly fed him his favorite breakfast food ever, scrambled
eggs with cheese. He also had apple and orange juice. He did pretty well but did not eat much.
Sunday Afternoon April 4 - 12:30PM
Jenna and I finally arrived at the hospital. I was just in time to help get Evan to
his chair. He likes to sit for a couple of hours during the day. Jenna came in and saw Evan.
Even though he looked so much better than the last time she saw him, Jenna was upset to see
her brother in that condition. Kelly took Jenna to get a drink and Jenna cried for her brother.
When she came back, she felt better and as she got more involved with Evan, she felt more
positive. Then Evan's lunch arrived and Kelly fed him pureed pot roast, thickened apple
juice, thickened chocolate milk and a lemon ice. He enjoyed his lunch, even the pot roast!
As he ate, Jenna encouraged him to chew. She was incredible, she softly rubbed his arm,
offered him words of love and support and helped Kelly as she cared for Evan. As he finished,
Jenna stayed by his side and spoke softly to him telling him "He was the greatest
brother ever!". It was one of those "heart-melting" moments you only hear about.
Sunday Afternoon April 4 - 5:00PM
He stayed in the chair for about 2-1/2 hours today. That's really good.
Jenna and I will be on our way back to Sandusky soon. Kelly told me that Evan was upset and
missed me last night, so I printed a picture of myself and laminated it. I gave it to Evan and
told him when he misses me, he can look at my picture and know how much I love and miss him
too. It will be so hard not seeing him every minute of every day but we know we must get Jenna
back to her own bed and lifestyle. Although we do not truly know what the future holds for
Evan, his very critical time has passed. After I get Jenna off to school, I will drive back
to Cleveland, spend a few hours with my champion and then be home by the time Jenna gets off
the bus. We have family staying at our house so someone will always be there if anything
happens. This week Kelly will be staying at the hospital and then we will trade places
as time goes by. As you all know by know, Evan will NEVER be alone at the hospital, EVER!
Sunday Evening April 4 - 10:30PM
Evan had a good dinner, in fact it was the same as lunch... even the pot roast was the same. He
enjoyed it so much that he gave a "thumbs-up" when asked if he wanted it again. Now he is
sleeping and were hopeful that he will sleep throughout the night. Kelly and I had been worried
about long term and short term memory. It seems he is doing just fine with both. He
remembers events that happened last year and tonight he remembered a conversation he
and I had last night. Remember he is still not able to talk very much so I am doing the talking.
He is communicating with "thumbs-up" for yes and "thumbs-down" for no.
Even though he is unable to open his right eye, the doctor examined his vision in both eyes and
said it looked fine. We were obviously happy with this news. Doctors say that he may gain the
ability to open his eye or they may be able to do a surgical procedure to fix the problem.
Another great day for Evan!!
Monday Morning April 5 - 12:00AM
Evan will have his MRI later today and they just started is I-V. He won't be able to eat anything
until after the MRI. He seems to be resting very well tonight.
Monday Morning April 5 - 9:30AM
I just got back after dropping Jenna off to school. Evan was resting and I had to work him
over pretty hard to wake him up. Just then his physical therapist walked in to start him on
his daily stretches and excersises. The therapist thinks Evan is doing very well. He said the
big advantage is "Evan really wants to do it". We really feel that Evan is going to do great
with recovery.
Monday Afternoon April 5 - 12:00PM
Evan is in his chair and we're still waiting for the MRI. It should be anytime now. Hopefully
it will get done before dinner so he can eat something tonight.
Monday Evening April 5 - 4:30PM
I know everyone wants to know the results of the MRI but, if you can believe it, he hasn't
even gone down yet. I'm not sure what time the test will be, but they did assure us, it
would be today. Kelly and I are nervous about this scan. We would love to see the miracle
continue and have the vessel have fixed itself but in case it does not, we will have to make a
decision. A very difficult decision. One one side, doctors tell us the vessel has the probability
to bleed more each year. This means the older Evan gets, the stronger the chance the vessel
will bleed. Or maybe the vessel will never bleed again.
There is no way of telling. So we would live on the edge everyday wondering if the
headache he is complaining about is it or just a indeed headache. It would be very difficult.
On the other side, the surgey itself is very risky. He has come all this way and another
procedure could leave him with extensive brain damage or worse. The surgery would require Evan
being back on the ventilator and surgeons again working in his brainn. They told us two weeks
ago that this was indeed very risky. We have been concerned about this decision all along and I
pray that we will be able to make the right choice.
Monday Evening April 5 - 7:30PM
Evan's MRI has been cancelled for today. He is now re-scheduled for an MRI tommorrow. Since he
has been NPO (no food or drink after midnight) all day, at least he can now have some dinner.
His surgeon was in and stated that Evan had looked "great" and they were moving him out of
the intensive care unit. They moved EVan to the 5th floor. If he does indeed have another
surgery soon, he will be back in the intensive care unit. Hopefully he will be able to sleep
well tonigt. I'm in Sandusky with Jenna and even though I saw him a few hours ago, I miss him
dearly. Kelly is at his bedside and I will see him again tommorrow after I take Jenna to school.
Monday Evening April 5 - 11:45PM
I am at home in Sandusky and I cannot believe how empty this house seems. Jenna is with me but
with Kelly and Evan so far away, it just seems all wrong. I was thinking (you know I do that a
lot these days) about the Tuesday before Evan got sick. It was the day of the March snow storm
that closed the schools. Kelly and Jenna had tickets to see Hillary Duff in concert and since
the roads were so snowy, I would not let them drive all that way (Cleveland) alone. So the
gentlemen that Evan and I are, we offered (insisted) that we drive them. We would drop them at
the concert doors, go do something manly and then pick them up when Hillary was done singing.
I told
Evan that we would find an Arcade and spend all of our quarters (something he LOVES to do).
We had dinner at Hard Rock Cafe and right after, Evan said he was feeling sick. Moments later
he vomited in a nearby mall waste basket. I suggested that we hope in the truck, turn on the heat
and relax until we have to pick up the girls. He said "ok but only if it's ok with you, I don't
want to ruin your plans". I told him "Evan, you are my only plans tonight". Let's go relax and
don't worry, I'll still owe you the arcade trip. We went to the truck and relaxed (he slept),
and waited about an hour for Mom and Jenna. Fast forward to Sunday (the day this all started).
About 3:00 PM, Evan said, "Hey Dad, why don't we go to the Arcade today?" I responded, "Why
don't we wait until we have more time, the mall closes early today". Let me tell you just how
much I now regret giving that answer. I will for the rest of my life wish I had said "sure,
let's go". I may have lost out on the last chance to do something like that with my best friend.
Friends, family, please make time for your kids everyday. We're seeing how it can all change in the
blink of an eye. We have always tried to let Evan or Jenna pick what we're going to do or
where we're going to go. We have always been a very "engaged" family and now all I can do is
pray for my son. I love my children unconditionally with everything I have and ache inside that I
cannot do anything to make him well. Evan and Jenna always call me the fixer because "Dad
can fix anything". I've always believed that, and now I'm faced with the biggest fix of all
time and I can't do it. I can't fix Evan and we all need him so much. We have gotten hundreds
of emails and cards and so many say the same thing. "I, like so many others, love you son".
We as a family have not slept under the same roof for almost 17 days and who knows when we will.
I could be months. So many of you think that we are so strong. If that were true, why do I feel
so helpless and sad and angry and hurt and weak and emotional and and and and.... However,
I do not feel alone and that is because of you. All you great people that have fallen in love
with Evan and offered hope and prayer to this family. Thank you all so much.
Tueday Morning April 6 - 12:50AM
I think I told you this earlier. I have always been the guy who helps others, during the
holidays, fixing a computer, cleaning up after a tornado, doing beneits, making donations,
etc... I enjoy
being that guy, I like to help. Now suddenly I have to be a different guy. I'm the guy that
needs the help now and it has been very difficult for me. Please don't misunderstand, I truly
appreciate the help that everyone is extending to my family. Each day I realize more and more
that I cannot do this on my own and I am so glad that you are there. This is just a new place
for me. I have always been the other guy. I received a letter from Evan's teacher just now and
she said some amazing things to me about Evan. She said: "In his 10 years, he has made such an
impact on people. He always wants to help others, well now it is our turn to help him and that
is just what we will do". I have looked at him everyday and never really realized until now
that I was really looking at another version of myself. Since I love to hear others talking
about Evan I want to share more of what his teacher said. "In the morning I get on Evan's
web site and read Evan's progress to the children. It is so awesome to see their little
faces looking right at me and hanging on to every word that comes out of my mouth. You can
hear a pin drop as I read to them. After lunch and recess, I check on the web site again for
any further updates. There is not a minute that goes by when Evan is not thought of in our
classroom. The students continue to where the badges with Evan's picture on them."
I hope it is ok that I printed this letter. I was too much for me alone to see.
Tueday Morning April 6 - 7:30AM
We were informed that EVan will in fact have his MR this morning at around 9:00AM. This means of
course that he cannot eat anything until the scan is done. They will put him out so he will
not move around in the MRI machine. You have to be completely still while doing this.
Tueday Afternoon April 6 - 12:10PM
Eavn is back in his room and the MRI is done. We do not have the results yet and probably will
not until much later tonight. This means that Evan can finally have some food. Hey, it's pureed
but it's food none the less. Kelly will feed him something good I'm sure.
Tueday Afternoon April 6 - 2:00PM
I'm on my way back to Sandusky to pick up Jenna after school. Then I'll take her to Dance and
we'll try to find some dinner. I have no idea what that may be but I'm sure a 37 and an 8
year old can figure that out. We will let you all know what the MRI shows once we get the
results. If you watch The Practice, hope for Amy to win. I'll tell you that story later.
Tueday Evening April 6 - 8:00PM
Still no details on the MRI. Evan did have a good dinner tonight. He had meatloaf, apple juice
and lemon ice. This was the most he had eaten since this all started. The motivation was
the nurse telling him that if he ate, they would not have to put the feeding tube back in.
He was more awake today than he had
been and just seems to get better each day. His physical therapist came in and gave Evan a
good work out. Also musical therapy was in today and played some music for Evan on the piano
and then let him try. He played a few notes with his right hand. That's right my son,
"America's Newest Piano Sensation".... maybe someday!!
Tueday Evening April 6 - 9:00PM
Kelly just called and gave Jenna and I an update. She said that EVan and her had watched a
Nickelodeon TV Award Show. Evan was laughing at one particular catagory. The "Best on TV Fart".
Now that sounds liem Evan may be feeling better. Then they started to watch American Idol
but Evan fell asleep. Kelly said they really had a fun evening.
Wednesday Morning April 7 - 8:00AM
Evan had a really good night's sleep. He is just starting to wake up and soon he'll have
breakfast. We still don't have the MRI results but we are hopeful that will be any minute.
Toady will be another day of physical, occupational, speech and musical therapy. It will be
a busy day for Evan. I still have not told you about the Apprentice and why we want Amy to
will. I will tell you about that later today.
Wednesday Afternoon April 7 - 2:00PM
No word on the MRI results yet. I'll let you know as soon as we hear something. Evan had a
good lunch. Roast turkey and gravy (pureed of course), thickened apple juice, lemon ice and
pureed pears. He ate very well. Ohh.... I almost forgot to tell you about The Apprentice.
In case you have not been watching, The Apprentice is a reality type show on NBC on
Thursday at 9:00PM. Each week someone gets "fired" off the show by Donald Trump. Our family
has been following this since the first episode. When there were 8 contestants left (out of 16),
each of us in our family picked the person we thought would win. I put up the cash and the
winner would get $20.00. Jenna picked Heidi, she's been fired. Kelly picked Katrina, she's also
been fired. I picked Bill and Evan picked Amy. They are both still in the "game". So although
I hate to give up the $20.00, I'm secretly hoping for Amy to win. Wait I just told everyone,
I guess it's not a secret anymore. Oh well!!
Wednesday Evening April 7 - 7:50PM
I have been speaking to Mrs. Woodburn from Evan's PSR class (or CCD as it used to be called).
She asked if I would stop by the classroom tonight when I picked up Jenna from her class. She
had said that Evan's classmates had something they
wanted me to give to Evan. I of course was honored to. They had made a huge banner painted
with beautiful colors and decorated just perfectly. They also had many cards and a small candle
holder a student had made. I spent about 20 minutes or so with the class and answered questions
they had about Evan. We also talked about the power of prayer and what it had done for their friend.
They had many great questions and honestly, I could have talked to them for an hour. I can see
why our son likes this class so much. Kids, if you're reading this message, thank you for
praying for Evan, making a beautiful banner and spending your time with me. I appreciated your
thoughtfulness and your excellent manners. And remember we were talking about a "donkey".
God Bless You All!
Wednesday Evening April 7 - 8:15PM
Jenna and I just got back from the last few errands we had to run (after PSR). We had just gotten
in when the door bell rang. It was our neighbors with a freshly baked chocolate chip cake.
It was still warm when I ate the first piece and actually the second piece too. And when I'm done
here maybe I'll eat a third piece...who knows. It is obviously very good. Thank You!
Wednesday Evening April 7 - 9:00PM
Here it is, what we've all been waiting for. The results from the MRI. I just spoke to Kelly
and she had met with Evan's doctors. The MRI showed the vessel as being about the same as it was
after the original surgery. We had hoped it would have been smaller or maybe even "bleed-out"
and gone. But
this was not the case. The doctors said the vessel is way to deep to be safely operated on. They
feared the surgery was mush more risky than leaving it alone for now. They also discussed a
procedure
called a "Gamma Knife". A Gamma Knife is a technique they can use to direct a pin point spot of
radiation through Evan's head and onto this vessel. From what I understand, this procedure is
generally a one-time dose and can usually destroy it's target rather quickly. What I do not know
is how precise it is. I do not know if brain cells around this vessel will also be damaged by
the radiation or not. They did say that he would have to wait a couple of months until the
swelling in Evan's brain and the trauma were more under control to reduce the risks. We will pray
that this vessel does not bleed again before it can be fixed. I certainly take most of this as
good news. As you may have gotten from my previous entries, I was very worried about additional
brain surgery. I understood the depth of the vessel and did not think it was a good idea to be
"poking around" in the depths of the brain. So I am glad that we will not do that right now. I am
however concerned about this vessel bleeding again while doing rehabilitation.
Wednesday Evening April 7 - 10:20PM
Evan is sleeping and I think he will sleep all night. He had another very busy day and I can't
wait to see him in the morning.
Wednesday Evening April 7 - 11:00PM
Someone had asked me today how many emails we had received and were any of them from overseas.
The answer is nearly 900 and no, none from overseas but many many states. That just changed.
I just read a message sent all the way from Gina in Belgium. She stated that she will be
spreading Evan's story. Wow, let's look at these stats. In 10 days, we had received almost 900
emails, the site has had over 25,000 hits from many states and we are now getting messages
from outside the united states. This is totally unbelievable to us. The world is a better
place than you sometimes think!!
Wednesday Evening April 7 - 11:30PM
I just got an email stating that the goalie from the Cleveland Barons will be stopping by
the hospital tomorrow to see Evan. I don't know what more I can say. I am amazed and then
amazed again at everyone's generosity and care for Evan.
Wednesday Evening April 7 - 11:40PM
I almost forgot to tell you what Jenna and I were talking about when we got home at 8:00PM.
We noticed that at our front door, nestled above the light fixture and protected from the
elements was a small bird's nest with eggs in it. We of course did not touch it but how can
this not be some sort of sign. Our son was critically ill in the intensive care unit for
over two weeks with little hope of survival His condition now
is being described as a miracle. We come to our home in Sandusky and find a bird's nest
containing eggs just a few days before Easter Sunday. Wow, this seems pretty powerful!
Thursday Morning April 8 - 7:30AM
Good morning Evan, which was greeted with a very soft and almost silent, "good morning Mom".
Evan slept well last night and is having his usual breakfast of pureed food and beverage.
I am still wondering about this Gamma Knife Surgery. I have many questions.
Thursday Morning April 8 - 10:00AM
I dropped Jenna off at school and just arrived in Cleveland at the hospital. I was in time
to see Evan's physical therapist (he is great) working with him. Ok, brace yourself for
this news. The therapist helped Evan get to his feet and while he "steadied" him, Evan
stood, putting pressure on both feet. WOW, this is great, we were all so impressed.
Thursday Afternoon April 8 - 12:30PM
Evan ate a rather large lunch, pureed meatloaf (yuuummmm) well and gravy of course. He really
seemed to enjoy it but not as much as Dad's world famous, next day, cold meatloaf sandwich.
Topped with a little salt and light mayo. We both enjoy these... Jenna and Kelly... not so
much... It must be a guy thing!
Thursday Afternoon April 8 - 2:00PM
After Evan ate lunch, he fell asleep. We decided we would go down to the cafeteria and grab
a quick lunch as well. We were surprised when we returned. Remember I told you about Evan
hopefully having a visitor from the Cleveland Barons Hockey Team? Well he did, goalie NOLAN
SCHAEFER and fan coordinator JOCK CALLANDER. What great guys, not only did the pay Evan a visit,
they brought along a "game-hardened" hockey stick that the entire team signed. This was
INCREDIBLE. Now if we could only get LeBron James to send up a team autographed basketball. (haha)
Thursday Evening April 8 - 7:00PM
Evan had a big pot roast dinner tonight. Well it was more like a pot roast smoothie. I know
by talking about that, everyone must be getting hungry and wanting their very own pot roast
smoothie. But I can't help you with that. We did get more information from the doctor that
would do the Gamma Knife Surgery. It seems to be a pretty non-invasive procedure. They do not
have to cut into the brain. I understand this as being many "beams of light" that meet in
the center and create a very focused, concentrated radiation beam that will target the blood
vessels in Evan's brain. The doctor that will do this procedure was very nice (like everyone at
Rainbow is) and was very good and explaining how this worked and what the risks would be. It is
far less risky than brain surgery and has a much quicker recovery time. They generally do this
in a single day believe it or not. This cannot be done for 2 to 3 months until Evan is more
stable. However, the down side is, that vessel could in fact bleed again before we can get the
procedure done. And this procedure is not the last and final word on this vessel. The radiation
causes the vessel to "slowly constrict and die off" over a course of 3 to 5 years and during
that time, the vessel could also bleed again. My point is, please don't stop praying. Evan may
still have a rather lengthy recovery time.
Thursday Evening April 8 - 10:00PM
Two words, Amy's Gone! If you just watched The Apprentice, you know that Evan's pick, Amy was
fired!! So the only one left in the game is me. I picked Bill! I'm guessing that Evan will end
up with the $20.00 anyway!!
Friday Morning April 9 - 1:30AM
I hadn't asked but I hope everyone is ok with the new format of the web site. Keeping everything
on one page was making it difficult for older computers to update to the current information.
I felt this way things were a little more organized and easier to navigate. Also, I have to talk
to Kelly about it but I may add some of Evan's pictures from the hospital to the site. I'm not
sure if we'll do that or not... I have to think it over first. I hope everyone is planning a
wonderful Easter celebration with family or friends. The four of us will spend Easter together
with Evan at the hospital. Jenna is excited. She is now on spring break and will be at the
hospital at least three days in a row to spend time with her brother. As you can see, I am still
not sleeping much but I hope in time that will change. Sorry about the delay in the updates
today. I was at the hospital and the line in Evan's room was not working so I could not
update the site until getting back to Sandusky. Mary from the Clarion reminded me of the BAKE
SALE on Saturday morning at Wal-Mart. I'll talk to you all later today.
Friday Morning April 9 - 9:30AM
Evan started the day with his usual breakfast of thickened or pureed everything. He slept well
and woke up rested. He had physical therapy and of course did very well. Evan is wearing
foot and ankle braces to keep his feet straight. When his therapist took the braces off, he felt
Evan slightly pull his left foot out. This was very encouraging.
Friday Morning April 9 - 10:30AM
We just found out that Evan will be transported to The Rehabilitation Center For Children
at The Cleveland Clinic. He no longer needs hospital because his needs are really not medical
any longer. Evan needs therapy and were told The Cleveland Clinic has one of the best Children's
Facilities around. Nurses tell us he will be moved around 3:00PM today. When I get back to
Sandusky tonight, I will post the address of the clinic on Evan's web-site in case anyone wants
to send mail or cards.
Friday Morning April 9 - 11:00AM
I was talking to Jenna this morning before we came to Cleveland about Evan's current condition.
I told her what she should expect today when she saw him. She asked me why Evan was not talking
very much. I explained that Evan had a "sick brain" and we are all praying that it would get
better soon. She looked up at me and said "Dad, why can't they just give Evan a new brain and
him better?" I of course felt her charm and tried to explain why that couldn't happen.
Friday Afternoon April 9 - 1:00PM
In the car ride up earlier, Jenna and I were talking when she suddenly stopped me. She said
"Dad, this is the song that makes me think about Evan." On the radio was the new Phil Collins
song from the "Brother Bear" movie. She said everytime she hears the line "I'll be watching
over you", it makes her think that if Evan had gone to heaven, she knew that he would always
be "watching over her." It was so sweet and so sad all at the same time. Next week I will try
to find some time to pick up that CD for her.
Friday Afternoon April 9 - 1:30PM
I forgot to tell you what else happened yesterday. During occupational therapy, Evan and a
stuffed animal (played by me, complete with voice and actions) played a game or Connect 4. I put
up $5.00 for the winner. Evan beat Puppy and won the $5.00. GREAT JOB EVAN!!!
Friday Afternoon April 9 - 2:50PM
The transport arrived to take Evan to The Rehabilitation Center For Children at The Cleveland
Clinic. I loaded the car (several trips) and they loaded Evan into the transport. After a very
bumpy ambulance ride we arrived at the center. Evan was promptly admitted, settled and fitted
for a wheel chair. He was doing wonderfully. I on the other hand... maybe not so much! Let me
tell you how unbelievably difficult it is to walk in to a children's rehab facility. Other
children with their own problems and most in wheel chairs. It is difficult to take in and I
found it to be very overwhelming. The facility itself seems nice and the staff seems to care
very much for the patients and very interested in rehabilitating them. I believe that Evan is
in the right place and will get great care. It was just a lot to take in.
